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@A MySpondylitisTeam Member.i believe so, you may be right. An auto accident shattered the growth on my lowest 3 vertebrae, it's been a long road but it could be worse
Nice to hear from you again… read more
I had a disc fusion on L4-L5 in 2017. It has alleviated the majority of infringement on my spinal column. One dr said it was grade 2, however neurisurgeon said it was more a grade 4. Very big… read more
I am seeing a rheumatologist this week and am hoping for the possibility of a prescription for some of the self injecting pain relievers. Because of the Opioid problem, my regular doctor will only prescribe 12 Vicodin a year, which just isn’t sufficient when I need it. I may not need it very often, but might need one 4 days in a row. I have been taking Vicodin for 40 years and used to get a prescription of 60 a year, which I never abused. Sometimes my back will go into a spasm so severe… read more
I understand all you said. One of our MM providers started making RSO gummies and also distills tinctures. I seem to recall reading that Ceres is a full spectrum (aka RSO) producer. I looked for that… read more
My brother has had both of his knees, sacroileac joints and his shoulders injected with the new synovial fluid replenishment injections. He say his doctor really knows his stuff. My brother had spinal fusion by age 40 due to degenerative disk, degenerative joint and spinal stenosis. His blood test for HLA-B27 came back okay. How can he be this eat up with arthritis for years, and have inflammatory ulcerative colitis and not have enteropathic or ankylosing spondylitis?
Oi
I seem to recall he was in his late 30's when he had a surgery to fuse two of his lumbar vertebrae. I think his other joints probably started up about that time, but came on gradually.
Are chondroid lesions within the bone marrow of the femur typical for Spondylitis sufferers? I have one almost a full cm in length in my upper femur close to the hip joint. My orthopedic surgeon didn't point it out and I read online that it's not uncommon, rarely cancerous. I saw it on my MRI and it's mentioned in the Radiologist report. I'm wondering if it's a typical symptom of Spondylitis.
I'm so sorry Pam. I'm at a rare loss for words. I cannot imagine the agony you must be experiencing with the loss of your soul mate support. Wow, what an awful blow.😔Thinking of you and hoping for a… read more
Also maybe finding it harder to come across words?
Also, I forgot my calendar while I was writing, see! I use Google calendar to remember just about everything I need to do in life that is not directly work meetings because those are on my work… read more
I do...
I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these problems of caught in the middle between pain management and ER?
Yeah like Friday evening I went out Friday 9 hours before I came to having hard jerking like a terretts patient or sy
I went to the doc this weak complaining of severe memory loss, as well as pain I'm my shoulders neck and head. When I forget something I have zero recall. My doc gave me a very basic memory test and said I was fine. I'm very frustrated as I know I'm not
I was diagnosed with Sjogrens a year ago. Doctors I am seeing at Mayo have told me if you have one auto-immune disease you usually end up with multiple! I weaned myself off Narcotics for pain and… read more
After mentally focusing as long or intense as I can handle on a "less brainfoggy" afternoon (or hour), I am then more deeply exhausted than ever! It takes me DAYS (or longer) to recooperate back to "My usual."
It's BRAIN activity, not muscle activity. Why is my BODY deeply fatigued?
Well said ! Truth!