Spondylitis

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1 medium

Could the nausea be caused by the condition of my spine effecting the nerves to my stomach?

Could the nausea be caused by the condition of my spine effecting the nerves to my stomach?

I usually don't pay much attention to physical discomfort bit yesterday it got so bad I took myself to the ER. I was having severely nausea and loan up the sides of my back. Blood tests and a cat scan showed nothing wrong, in fact a couple of nurses commented on how they rarely see a healthier specemin of my age.

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A MySpondylitisTeam Member said:

I keep getting a weird twinge type of pain in my left ear, could that be a pinched or trapped nerve that is causing it?

posted about 10 hours ago
5 medium

Has anyone tried Simponi Aria yet?

Has anyone tried Simponi Aria yet?

I am waiting on the approval process for this. I've researched it so much and my doctor and I believe it is the right way for me to go due to anxiety with the Humira pen. I have been on Celebrex for the past year and I am in pain everyday and so fatigued. If anyone knows more about the Simponi Aria I would love to know your thoughts.

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A MySpondylitisTeam Member said:

I have been using Simponi for 7 years now it has worked great for me I am pretty much pain free I do have some bad days but they are few and far between… read more

posted 2 days ago
7 medium

Bit embarrassing, but...

Bit embarrassing, but...

Is anyone bowel incontinent? I have started leaking out poo and I don't know it's there until I go to the loo and I, well, smell it! My GP is treating me for severe impacting, so I'm on Laxido, was on Lactulose but it didn't do the trick . But, since taking it (started last Friday) twice daily, from Monday this week, several times a day, there is always some poo (and I mean several wipes worth, we're going through loo roll at a rate of knots ) sometimes quite a bit on my… read more

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A MySpondylitisTeam Member said:

Yep, I'm totally with you @A MySpondylitisTeam Member. I used to go to Sunday school as a child (Methodist), then as an 11 year old, decided that I… read more

posted 2 days ago
5 medium

Medical marijuana, cbd use

Medical marijuana, cbd use

I am looking for alternative treatments for my AS. Will be on pure Medicare this next year and I’m very doubtful that I will be able to afford my humira. If you are using or have tried using either the full product or the cbd (without thc) I would love the feed back. Also if you know a source for good cbd, product descriptions are sketchy online. ( I can buy from 9 to 120 and they all read the same) thank you!

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A MySpondylitisTeam Member said:

I will never touch chemical ever again, all chemical drugs do is kill me real, real bad. People have seen me sick for years and years.
Harsh stuff. I am… read more

edited, originally posted 11 days ago
5 medium

Has anyone had trouble losing weight after being put on Prednisone?

Has anyone had trouble losing weight after being put on Prednisone?

I was only diagnosed about a year and a half ago. My doctor wanted me to try Prednisone for 2 weeks tapering me off it in those two weeks to confirm I have AS. I gained 30 pounds in just two short weeks and now am really struggling to get it off. It has also made my body ache more since I am carrying the extra weight. Does anyone have any suggestions on what I could do? Thank you for the help!

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A MySpondylitisTeam Member said:

I have to get off the site now my eyes just got worse they do this after looking at a phone for a bit if I don't stop now it gets so bad I can hardly… read more

posted about 2 months ago
4 medium

how much are people in pain.

how much are people in pain.

are you an every day or on and off.. i have had pain off and on most of my life. i think what masked it 90 percent of the time is i slept on a warm water bed for years but none the less i had days where it felt like some one stabbing me in the but, my chest felt like i was kicked in the chest and the couple of times i ended up in the er cause my lower back hurt so bad i could not sit or stand. they said it was a pulled muscle.

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A MySpondylitisTeam Member said:

I hope it works out for you, I had a cervical fusion, disctomectomy (sp) 4-6, I am 10 times worse now than I was before, I had been having more and more… read more

posted 24 days ago
9 medium

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

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A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member Lowman
Yeah I can't see why anyone would take some of these meds if they didn't have any pain, the side effects for a start… read more

posted 27 days ago
5 medium

Help: Has anyone had their legs give out at the groin area?

Help: Has anyone had their legs give out at the groin area?

Before back surgery and now my legs have a tendency of giving out when I walk and sometimes when I am standing. It gives out at the groin area which causes a sharp shooting pain. If you have or have had this problem please let me know what was and or is being done to alleviate it.

Thank you so much.

Mary

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A MySpondylitisTeam Member said:

Just medication which isn't working everyday. In fact, this not a good day ..I'm in so much pain. There's just so much happening. I'm afraid to put it… read more

posted about 1 month ago
2 medium

How many people think their spondelosisthesis ia also affecting their hips.

How many people think their spondelosisthesis ia also affecting their hips.

I have spondelosisthesis a grade 1,the other complication I have is related to my left hip. One consultant went from diagnosing spondelosisthesis to saying I need a new hip, which will make your back worst but I can't treat that? I just knew in my gutt this was incorrect. I had a second opinion, from another consultant. My symptoms are apart from the lower back pain, are that I can hardly walk due to the pain and restriction in my left… read more

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A MySpondylitisTeam Member said:

I have bilateral SI joint pain as well. Constant aches.

posted about 1 month ago
0 medium

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have been calling more often over the last few months. I avoid the ER because I tend to be treated like an drug addict. Any one tx so?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more

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A MySpondylitisTeam Member said:

Unfortunately unless your situation is a life or death matter the ER is more concerned with keeping their licenses and not going to jail then treating… read more

posted 2 months ago
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