I've not seen this question asked. I recognize the challenges of ongoing pain, discomfort and backing away from physical contact and intimacy. What I've heard is most people don't want to be bothered, it's another task and/or imposition. What I know is it's difficult to nurture relationships when you're feeling miserable and you want to be left alone.
Physiologically/psychologically speaking, there is a pleasure zone that can lift us out of… read more
I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more
I've gotten steroid injections at specific target.
I've gotten nonsteroid injections for general area.
Not supposed to come back for 3 months. I've always been ready to return at 2 months.
NOW I've been sent on supposedly for epidural (numbing the whole spine?) It supposed to be good for a year?
I read people's posts here... seems there are lots of kinds of shots. Anyone want to straighten me out please???
I have spondelosisthesis a grade 1,the other complication I have is related to my left hip. One consultant went from diagnosing spondelosisthesis to saying I need a new hip, which will make your back worst but I can't treat that? I just knew in my gutt this was incorrect. I had a second opinion, from another consultant. My symptoms are apart from the lower back pain, are that I can hardly walk due to the pain and restriction in my left… read more
40 year old male diagnosed this year but likely have had it for 20 years.
Xrays show fusion in T3 (among other areas). I have pain daily and stiffness. Doctors categorize as severe. Inflammation markers are high.
1- multiple NSAIDS which I know are not sustainable and also didn’t sit well with stomach
2- regular gym, massage, stretching - this helps
3- no starch diet for 3 months (not sure yet if this is helping)
Doctors have all recommended I go straight to… read more
Before back surgery and now my legs have a tendency of giving out when I walk and sometimes when I am standing. It gives out at the groin area which causes a sharp shooting pain. If you have or have had this problem please let me know what was and or is being done to alleviate it.
Thank you so much.
I have full fusion in my neck area. It is fused in a head downward position. I was wondering if anyone might know if wearing a neck brace several times a day might help to straighten neck to a more normal position ? I know most here with AS are not in the complete fusion stage ( and I hope never are), but maybe someone might know if this might help.
I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these… read more
Anyone have intermittent genital nerve pain/tingling? My pelvic PT says it may be pudendal neuralgia from spinal muscle spasms pressing on a nerve. She also said the pelvic area tightens when the SI joints need help. But my rheumatologist says the genital tingiling is from fibromyalgia.
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