My Dr. And I agree that I would do better Remicade infusion every 6 weeks( insurance 8 weeks) so limited living 3 out of 8 weeks! I told my Dr. that feel like I'm living dogs life. 3weeks out of 8 weeks lost because of a lot of pain and fatigue . So we are looking into changing from 8 week Remicade to another medication from (list of biologics and related) . Anyone experence similar issues and found a better medication to limit / reduce pain and fatigue for those lost 3 weeks of 8 weeks… read more
Most of those companies have complete coverage of your med. You’re just responsible for infusion costs unless it’s a home injection.
I'm concerned that I might have bronchitis and I am on remicade (if you couldn't guess from my subtle title) I was wondering if anyone has had any experience with this, would they just delay my infusions until the bronchitis clears up if that's what this is? I've heard of all the dangers of pneumonia and biologics, but haven't read anything about bronchitis. Thanks for any input, hope you all are staying as well as can be today :)
YOU.cannot take THE REMICAIDE IF you are on any kind of antibiotics.you have to be off 2 weeks after taking antibiotic.PLEASE.please talk with your RHEMUTOLOGIST or your infusion nurse.take care.
My physician assistant does not agree that the arthritis meds: Methotrexate, Remicade are causing the high fatigue.
Thanks for your response. I'm trying to locate another rheumatologist. A 2nd opinion would be wise, should have before I started biologics.
Remicade works for 8 weeks now each time. Is there any better/effective biologic inj. at competitive price as i am not affordable to costly biologics though available.
Andrographis extract. See an Ayurveda medicine specialist or research it on your own.
My head is leaning forward and I can not help it. I feel like I'm leaning forward. The pain in my lower back and groin is just getting worse. i don't know what to do next.
Thank you mickcraig for posting how beneficial the stimulator has been for you. I have often wondered lately if it is something that I should consider or not.
@A MySpondylitisTeam Member hi! I read your post about that you have a lot of UTIs. I have that problem too. Trough my adult life I’ve been having that problem. And since my diagnosis of PSo,AS and… read more
Having more pain at waist and upper thoracic areas. Dr doesn't see need to xray any more as results would not change treatment plan.
Safe travels! Merry Christmas!
Dairy is a trigger for me i believe as is too many carbs!
Thank you so much. Appreciate your feedback. I will give it a shot for sure.
I developed uveitis in my left eye, but when I tell people about it, it seems that no one has heard of it. So I’m curious if anyone on here has developed it and if it’s a common symptom.
This is my single biggest symptom . Uveitis twice a year. Left eye only . When not a full blown flare up, deal with “sinus” like left eye pressure . debilitating
headaches … seems quite far from… read more