I am 53 yo female, recently diagnosed with an Inflammatory arthritis, HLA B27 positive. I have been treating the pain with Zorvolex ...usually 35 mg twice a day and although I have also been prescribed Humira, I don’t want to take it. Doctor agreed to trial run oral medicine and Otezla and Sulfasalazine were mentioned alternates. I
Has anyone been to the Mayo Clinic in Rochester,MN? My body is building Anti-bodies to every biologic they give me. To the point I've been in the hospital 3 times in the last 6 months because I almost died from them. My Rheumatologist told me I have an antibody disorder. Does anyone else have this problem? What was done to help you?
So the CDC recommends a vaccine for people with diseases of immunosuppression. Does that include Axspa?
My doc tried to get me in a drug trial but the mri didn’t show inflammation and hla b27 was negative so I don’t qualify. Now I’m stressed that this info will make him rethink my diagnosis. I was happy(sort of) to finally having an answer to why I’m in so much pain all the time and get on track to feeling better(sort of). His diagnosis was based on deteriorating of the si joints caught on an X-ray.
Anyone use a Recumbant Trike for exercise ?
I'm looking into it, as walking causes a pain in my hips that I describe as "Locking up" followed by spasm like pain in my lower back.
On the recumbant trike, your in a almost 0 gravity position, and pedaling for muscular, cardio excercise. Hoping it will work for me ! If so I'll let everyone know !
Just wondering since @Dilaudid is an opioid if this is for long or short term use ?
Pain mgt doctor diagnosed & ordered injections to my si joints. I have gait, mechanical, leg length discrepancy issues. Will that defeat the relief from injections? Have hidradenitis, will that inflammation cause problems? Can injections be done at clinic without available images, only x Ray's during procedure? Will injections in my lower back help pain in my upper back/neck.
I have cervical spondylitis and degenerative disc disease, lately upon getting out of bed I have gone extremely dizzy, followed by breaking out into a cold sweat and feeling nauseous. It lasts for about 30 minutes and then I'm fine for the rest of the day. Anyone else have these episodes?
I have a feeling that it's either bone spurs or discs pressing on my spinal cord, but I also know that seeing my GP will trigger a wait to see a musculoskeletal triage, followed by a wait to… read more
I got a call that I was taken off the wait list after over a year for the pain clinic near me, and that if I'm interested in "injection therapy" I should call for an appointment. I'm just not sure. It seems like any sort of injection therapy given to individuals with AS turns out to give results that vary from terrible to no effect. I don't often hear of this helping. Maybe you all have some input. Thanks :)