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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Clinical trials"

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Covad And Axspa

Covad And Axspa

So the CDC recommends a vaccine for people with diseases of immunosuppression. Does that include Axspa?

A MySpondylitisTeam Member said:

I am on Triazolam 0.25 x2 at bed. Now when you take them make sure you are in bed and plan to stay there. You will be hard to wake up for at least 6-8 hrs and you will remember nothing. I sleep walk… read more

posted 8 months ago

Elhers-Danlos Vs Spondylitis

Elhers-Danlos Vs Spondylitis

Hi everyone
I am wondering if anyone with experience of both Spondylitis & Elhers-Danlos may be able to help me understand the difference between symptoms of each. I just found out that Elhers-Danlos runs in my family on my dad’s side, while Spondylitis runs in my my mom’s family. I’m having trouble getting a diagnosis beyond fibromyalgia but I’d like to narrow it down more if possible as (1) I would like to try to address/tread root causes of pain & prevent future damage, and (2) I’m scared my… read more

A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member
Thank you for all this information - very helpful. 😊
I have seen the 'cupping' method and hot stones. I need to find one close to home. Waiting to see if the SI… read more

posted 9 months ago

Anyone Have A Spinal Stimulator Implant?

Anyone Have A Spinal Stimulator Implant?

I am to have surgery for this implant on the 22 of oct..and I am nervous about the pain involved with it in addition to my back pain as they wont turn the device on till after I am healed. Any advise and experience welcome

A MySpondylitisTeam Member said:

I have had an implant for over 3 years now. It has been very beneficial and as my pain advances the implant is adjusted to cover it
I don't need to have it on 24/7. Just with flair ups. I love it!… read more

posted 3 months ago
What is Spondyloarthritis? Read more >

Has Anyone Have A Nerve Stimulator Implanted In Their Back? If So, Did You Get Any Relief?

Has Anyone Have A Nerve Stimulator Implanted In Their Back? If So, Did You Get Any Relief?

A MySpondylitisTeam Member said:

I had one back in 2012 and I had a 2 week trial but I had to have it up so high I lost feeling in my bladder and colon .It was removed because of my instability kept displacing the leads .I had… read more

posted about 2 months ago

Can I Be Sensitive To Food If I’m Not Allergic To Any?

Can I Be Sensitive To Food If I’m Not Allergic To Any?

I tested negative on having any food allergies, but I do feel that food can affect inflammation. I cut saturated fats out because I was on keto and I was really hurting. Now I feel worse. Fatigue and hurting

A MySpondylitisTeam Member said:

Oh hell ya! When I cut out sugar, carbs, processed food and bad saturated fats, it is an ENORMOUS difference; however, since being on the Amgevita Biologic, I have noticed it greatly helps my… read more

posted 3 months ago
What is Causing Your Inflammation? Read more >

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I Have Been Calling More Often Over The Last Few Months. I Avoid The ER Because I Tend To Be Treated Like An Drug Addict. Any One Tx So?

I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these problems of caught in the middle between pain management and ER?

A MySpondylitisTeam Member said:

I look at it as people do not know enough about this disease and how painful it is. This disease needs to be educated more than what is being taught and spoken about.

posted about 1 month ago

What Should I Do?

What Should I Do?

Hello! My name is Erkinai and I’m 24 y.o.
My husband (28 y.o.) was diagnosed with SA 3 months ago. +HLA-B27
Now he started treatment. He has low back pain and psoriasis.
We are doctors, even though It really terrifies me 😥
I know clinics and further complications, and it is not helpful at all 🥺

What should I do?

A MySpondylitisTeam Member said:

I agree slow and steady, you will get your meds figured out

posted about 2 months ago
Could Your Back Pain Be Caused by Spondyloarthritis? Read more >

Why Would A Doctor Inform Me 10 Years Ago With Spondylitis An Auto Immune Disease And Never Explain What It Was?

Why Would A Doctor Inform Me 10 Years Ago With Spondylitis An Auto Immune Disease And Never Explain What It Was?

My last MRI was 2010 and it was discovered I have spondylitis and a spiral stenosis, disk degenerate and 2 curves in my spine. They only talked about the stenosis and never bothered to tell me about having an auto immune disease? I have every last symptom in there questions and have been debilitated by all of this misery I have suffered going untreated. I was told I was bi polar but a lot of my symptoms are directly from having an immune disease, nerve pain, atrophy and more than one. Constant… read more

A MySpondylitisTeam Member said:

1996 I go to a local pain clinic,doctor orders an EMG to test for nerve damage.2 weeks later I went to this same doc for the EMG.he sticks me with 26 needles and lights me up.Gets done and leaves the… read more

posted 9 months ago

What Foods To Stay Away From That Cause Inflammation?

What Foods To Stay Away From That Cause Inflammation?

Does anyone know what foods I should avoid to help keep down the inflammation? I believe I read that sugar was a culprit, but I need more information. Please and thank you!

A MySpondylitisTeam Member said:

Dairy makes me hurt. I now eat plant based cheese and almond milk.

posted 3 months ago