So the CDC recommends a vaccine for people with diseases of immunosuppression. Does that include Axspa?
Hi everyone
I am wondering if anyone with experience of both Spondylitis & Elhers-Danlos may be able to help me understand the difference between symptoms of each. I just found out that Elhers-Danlos runs in my family on my dad’s side, while Spondylitis runs in my my mom’s family. I’m having trouble getting a diagnosis beyond fibromyalgia but I’d like to narrow it down more if possible as (1) I would like to try to address/tread root causes of pain & prevent future damage, and (2) I’m scared my… read more
@A MySpondylitisTeam Member
Thank you for all this information - very helpful. 😊
I have seen the 'cupping' method and hot stones. I need to find one close to home. Waiting to see if the SI… read more
I am to have surgery for this implant on the 22 of oct..and I am nervous about the pain involved with it in addition to my back pain as they wont turn the device on till after I am healed. Any advise and experience welcome
I tested negative on having any food allergies, but I do feel that food can affect inflammation. I cut saturated fats out because I was on keto and I was really hurting. Now I feel worse. Fatigue and hurting
I have a spinal fusion, spinal cord stimulator, and I am in pain management program but they do not have urgent appoints and will not adjust meds between appointments so they tell be to go to the ER but the ER staff treat me like an addict. I currently have a hugh bruise going across my back and hip from a fall 2 days ago and am in terrible pain. Any one else running into these problems of caught in the middle between pain management and ER?
I look at it as people do not know enough about this disease and how painful it is. This disease needs to be educated more than what is being taught and spoken about.
Hello! My name is Erkinai and I’m 24 y.o.
My husband (28 y.o.) was diagnosed with SA 3 months ago. +HLA-B27
Now he started treatment. He has low back pain and psoriasis.
We are doctors, even though It really terrifies me 😥
I know clinics and further complications, and it is not helpful at all 🥺
What should I do?
My last MRI was 2010 and it was discovered I have spondylitis and a spiral stenosis, disk degenerate and 2 curves in my spine. They only talked about the stenosis and never bothered to tell me about having an auto immune disease? I have every last symptom in there questions and have been debilitated by all of this misery I have suffered going untreated. I was told I was bi polar but a lot of my symptoms are directly from having an immune disease, nerve pain, atrophy and more than one. Constant… read more
Does anyone know what foods I should avoid to help keep down the inflammation? I believe I read that sugar was a culprit, but I need more information. Please and thank you!
Dairy makes me hurt. I now eat plant based cheese and almond milk.