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It looks like it’s still in the trial stages but sounds promising.
My wife is on it for rheumatoid arthritis, she has it bad but the trexone helps.
My neuro is absolutely against spinal cord stimulators and ablation, I didn’t ask why he was against ablation. But he said they seldom get the spinal cord stimulators in the right place. If the placement is good it might work. He said the technology has not advanced where they can position the probe into proper position because if a person lays on a table they can’t tell where the weight bearing pressure is to place it effectively and if they stand the person up there is 100 pounds of whatever… read more
I know very many the same.
I have had 3 major back surgeries in the past 2 years. I'm just done with surgeries. My Pain management Dr wants me to try the Spinal cord Stimulater. I'm going for a trial run of it next week to see if it works be they implant it. I do have spondylitis, spondylosis, and a few other problems going on with my back to.
I am going to try the stimulator. Waiting for a trial date. Will post my results!
Biologics aren't pain relievers or energy supplements. They target one particular type of protein molecule called a cytokihe that your dr THINKS you MIGHT have that is causing your pain and fatigue… read more
Good answer BarbieConnie! We all appreciate you girl!! Enjoy your afternoon!!!
My Rheumatologist experiments with biologics on me to control disease progression. So far I've been on 5 to no avail. In less than 48 hours after my last injection I developed acute bronchitis and sinusitis, a listed possible side affect. Now I'm not feeling the potential benefit is worth the risk. Because biologics target specific cytokines, it makes sense that the biologic won't help if that specific cytokine is not present. Now I'm wanting to get a cytokine panel to determine which ones are… read more
@A MySpondylitisTeam Member. Maybe. Testing for cytokines definitely needs to be made available and covered by insurance. However, making more and better informed drs won't help at all if patients… read more
My doc tried to get me in a drug trial but the mri didn’t show inflammation and hla b27 was negative so I don’t qualify. Now I’m stressed that this info will make him rethink my diagnosis. I was happy(sort of) to finally having an answer to why I’m in so much pain all the time and get on track to feeling better(sort of). His diagnosis was based on deteriorating of the si joints caught on an X-ray.
I am negative also. My doc said it doesn’t matter that much. I have AS in my neck and si joints/ lower back. All my blood work was also normal. I was misdiagnosed with fibromyalgia and now I was… read more
1.9% of people taking Enbrel injections have low back pain as a side effect. A Phase 4 study revealed that it is mostly women over 60 taking Enbrel for. 1-6 months who are affected. Unfortunately, I am one of the 1.9% of those taking Enbrel who had this side effect. I am trying to find out more about this topic but cannot locate the actual study. I want to know if this is temporary or if the pain never goes away. If it is temporary, how long before it gets better? Is it associated with any other… read more
Thank you for sharing, I found it very helpful