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Top 10 Search Results for "Clinical trials"

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Has Anyone Taken Otezla To Treat Their AS?

Has Anyone Taken Otezla To Treat Their AS?

I am 53 yo female, recently diagnosed with an Inflammatory arthritis, HLA B27 positive. I have been treating the pain with Zorvolex ...usually 35 mg twice a day and although I have also been prescribed Humira, I don’t want to take it. Doctor agreed to trial run oral medicine and Otezla and Sulfasalazine were mentioned alternates. I

A MySpondylitisTeam Member said:

Humira is my doctors #1 recommendation and the citrate free version is reported to be the most user friendly.
Even so, I sought a second opinion and I’m… read more

posted 3 months ago

Mayo Clinic

Mayo Clinic

Has anyone been to the Mayo Clinic in Rochester,MN? My body is building Anti-bodies to every biologic they give me. To the point I've been in the hospital 3 times in the last 6 months because I almost died from them. My Rheumatologist told me I have an antibody disorder. Does anyone else have this problem? What was done to help you?

A MySpondylitisTeam Member said:

I tried Rheugesic. It seems to help. Sometimes I can hardly walk. In pain night and day

posted almost 2 years ago

Covad And Axspa

Covad And Axspa

So the CDC recommends a vaccine for people with diseases of immunosuppression. Does that include Axspa?

A MySpondylitisTeam Member said:

Memory foam!!! It is the ONLY type of mattress that I can sleep on.

posted 12 days ago

Is Anyone Hla Negative And Still Diagnosed As?

Is Anyone Hla Negative And Still Diagnosed As?

My doc tried to get me in a drug trial but the mri didn’t show inflammation and hla b27 was negative so I don’t qualify. Now I’m stressed that this info will make him rethink my diagnosis. I was happy(sort of) to finally having an answer to why I’m in so much pain all the time and get on track to feeling better(sort of). His diagnosis was based on deteriorating of the si joints caught on an X-ray.

A MySpondylitisTeam Member said:

That’s true

posted about 1 month ago

Recumbent Trikes For Exercise

Recumbent Trikes For Exercise

Anyone use a Recumbant Trike for exercise ?
I'm looking into it, as walking causes a pain in my hips that I describe as "Locking up" followed by spasm like pain in my lower back.
On the recumbant trike, your in a almost 0 gravity position, and pedaling for muscular, cardio excercise. Hoping it will work for me ! If so I'll let everyone know !

A MySpondylitisTeam Member said:

Wow! Congratulations!

posted 16 days ago

Dilaudid Long Or Short Term Use ??

Dilaudid Long Or Short Term Use ??

Just wondering since @Dilaudid is an opioid if this is for long or short term use ?

A MySpondylitisTeam Member said:

I too will never play nice with any doctor who treats me like everything is all in my head. Its stupid. You get it confirmed that yes you have the… read more

posted almost 3 years ago

What Is Treatment For Spondylitis In Si Joint?

What Is Treatment For Spondylitis In Si Joint?

Pain mgt doctor diagnosed & ordered injections to my si joints. I have gait, mechanical, leg length discrepancy issues. Will that defeat the relief from injections? Have hidradenitis, will that inflammation cause problems? Can injections be done at clinic without available images, only x Ray's during procedure? Will injections in my lower back help pain in my upper back/neck.

A MySpondylitisTeam Member said:

I had steroid injections in both of my SI joints. It's very a very quick procedure with conscious sedation. You lie down on an X-ray table, you get… read more

posted 3 months ago

Dizziness And Cervical Spondylitis

Dizziness And Cervical Spondylitis

I have cervical spondylitis and degenerative disc disease, lately upon getting out of bed I have gone extremely dizzy, followed by breaking out into a cold sweat and feeling nauseous. It lasts for about 30 minutes and then I'm fine for the rest of the day. Anyone else have these episodes?
I have a feeling that it's either bone spurs or discs pressing on my spinal cord, but I also know that seeing my GP will trigger a wait to see a musculoskeletal triage, followed by a wait to… read more

A MySpondylitisTeam Member said:

A specialists will help take care and may God Bless Prayers and Hugs

posted 8 months ago

Injection Therapy

Injection Therapy

I got a call that I was taken off the wait list after over a year for the pain clinic near me, and that if I'm interested in "injection therapy" I should call for an appointment. I'm just not sure. It seems like any sort of injection therapy given to individuals with AS turns out to give results that vary from terrible to no effect. I don't often hear of this helping. Maybe you all have some input. Thanks :)

A MySpondylitisTeam Member said:

I have been going for injections with pain management for YEARS now....I have to agree that they are NOT helpful! I get very little relief and not for a… read more

posted 8 months ago

Im Scheduled For Insertion Of Pain Stimulator Device. Anyone Have This And Success?

Im Scheduled For Insertion Of Pain Stimulator Device. Anyone Have This And Success?

A MySpondylitisTeam Member said:

I’ve been thinking about doin this for a few years. I have a consultation on Jan 31. I will discuss this as injections etc never worked. Thanks for all… read more

posted 10 months ago