Spondylitis

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Anyone had a horrible appointment with a Chronic pain doctor?

Anyone had a horrible appointment with a Chronic pain doctor?

A little bit of background
I live in the UK and am blessed to have the NHS. The problem is that it is struggling and the area I live in has particularly bad waiting times (shortages of beds, doctors, nurses etc)
I was waiting for 22 months for an appointment with the chronic pain consultant.
I was excited and nervous. My GP had told me of various treatments which could be offered to me (tens unit, spinal epidural etc)
My appointment was on Monday and… read more

A MySpondylitisTeam Member said:

Barbara JettLacayo
So glad they are giving meds so no ibuprofen. That's really bad for the kidneys. I don't keep any in the house. My GFR is up to 60… read more

posted 6 days ago

What are your experiences with Celebrex and Humera?

What are your experiences with Celebrex and Humera?

Hello everyone! I need some advice. I have Ankylosing Spondylitis and have a really hard time with anti-inflammatory meds. All of the nsaids that my Drs have given me to this point and the otc ones I've tried on my own have really done a nasty number on my stomach. So, today my new rheumatologist prescribed Celebrex for me saying that he has had some really good luck with it being better tolerated by patients with stomach issues like myself. We also discussed my… read more

A MySpondylitisTeam Member said:

I was in it for 15 years and it was great! Suddenly it just stopped working.

posted 11 months ago

How many different or other types of Spondylitis is there? And if possible, a description or the difference between each?

How many different or other types of Spondylitis is there? And if possible, a description or the difference between each?

I have been diagnosed with Spondylothisis in 2006. During my research, I've noticed there is several types of Spondylitis. How many different types of Spondylitis is there?

A MySpondylitisTeam Member said:

Vicky Irvine
I am not too bad at the moment, the odd twinge but at least I can walk around stood straight and not bent in half lol. When I was fostering… read more

posted 2 months ago

What is the most important thing do you look for in your doctor?

What is the most important thing do you look for in your doctor?

A MySpondylitisTeam Member said:

CBD with THC is only CBD oil that helped. I hate pot but the CBD with THC oil in it didn't get me high. Took away pain.

posted about 1 month ago

Has anyone had trouble losing weight after being put on Prednisone?

Has anyone had trouble losing weight after being put on Prednisone?

I was only diagnosed about a year and a half ago. My doctor wanted me to try Prednisone for 2 weeks tapering me off it in those two weeks to confirm I have AS. I gained 30 pounds in just two short weeks and now am really struggling to get it off. It has also made my body ache more since I am carrying the extra weight. Does anyone have any suggestions on what I could do? Thank you for the help!

A MySpondylitisTeam Member said:

. That’s good to hear. I need to try some of your supplements.

posted 23 days ago
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