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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MySpondylitisTeam Member asked a question 💭
Pittsburgh, PA
August 12
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A MySpondylitisTeam Member

Daily, yes. Topicals are more effective than anything else I've tried, and I use medical gummies in the PM to calm everything down. Just remember to take short breaks from edibles or inhalants to avoid tolerance building.

We need to trash the stigma. We have at least 43 states that offer it medically, and so many that offer recreational. Now that it has been reclassified to schedule 3 it makes the pathway easier.

Like any medication or supplement, begin it clinically and keep logs if needed. If it helps, awesome!

August 13
MySpondylitisTeam

Several supplements have shown promise for helping manage spondylitis symptoms. Here's a quick rundown:

- Vitamin D – Supports bone health and has anti-inflammatory properties. Low vitamin D levels are linked to higher disease activity in spondylitis. One MySpondylitisTeam member shared, "I take a mixture with B vitamins Show Full Answer

Several supplements have shown promise for helping manage spondylitis symptoms. Here's a quick rundown:

- Vitamin D – Supports bone health and has anti-inflammatory properties. Low vitamin D levels are linked to higher disease activity in spondylitis. One MySpondylitisTeam member shared, "I take a mixture with B vitamins and vitamin D every morning, and it's the difference between doing and don't-ing!"
- Omega-3 fatty acids – Known for their anti-inflammatory effects and may help reduce disease activity.
- Turmeric (Curcumin) – Has anti-inflammatory and antioxidant properties. Some members report it helps with stiffness and pain.
- Ginger – Has anti-inflammatory properties, though more research specific to spondylitis is still needed.

Always check with your rheumatologist before starting any supplement, as some can interact with spondylitis medications. As for THC and cannabis, early research suggests it may help with chronic pain, and some MySpondylitisTeam members have found it helpful. One member noted, "I use CBD in the mornings and marijuana in the evenings. It helps me immensely and immediately!" Another found it helpful for sleep but not pain relief, so results can vary.

It's worth having an open conversation with your doctor about whether cannabis could fit into your overall treatment plan.

August 12
A MySpondylitisTeam Member

@A MySpondylitisTeam Member: Ray, I can’t say definitely that THC has been helpful. I can say that I have tried it and it appears to be helpful. I have tried it to add to and compliment the other things I do to help with pain, and the other effects of having AS. Its not regular that I use it, but when i do it seems to help at least to help take some of the edge off the pain so I can sleep. Use it in conjunction with everything else you use.
Supplements are a different matter. depending upon what you need them for. I found that medicines I wss prescribed, I had to cut out because of negative interactions with other things I was prescribed. In order, to do better, supplements I had to look at like Turmeric, Beet Root etc were necessary to help reduce inflammation etc. in certain cases it is necessary to increase my dose of certain vitamins depending upon what they for. - Drew

August 27
A MySpondylitisTeam Member

I’ve been dealing with AS for 60 years and to the best of my knowledge, I’ve tried everything available. Today, it’s Duloxetene (off label use) and the generic equivalent to Tylenol arthritis. The Duloxetene disrupts pain pathways but according to my Dr. it only works in about 50% of patients. I’m one of the lucky ones. The improvement started within days of starting on the med when I realized I was putting on my socks standing up instead of sitting on the edge of the bed. The improvements continued from there. I would say that the pain has been reduced by 50%-70%. Good luck!

August 18
A MySpondylitisTeam Member

Thanks

August 13

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