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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MySpondylitisTeam Member asked a question 💭
Scottsdale, AZ
July 19
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A MySpondylitisTeam Member

@A MySpondylitisTeam Member: In very limited quantities, each morning I have dark chocolate expresso beans. I don’t drink coffee unless its iced. I started eating scientifically- AS is causing me trouble getting food down. So I only eat things in a size I know I can get down. The dark chocolate expresso beans give me beneficial fats, and my caffeine jump in the am. I haven’t had a bad effect from dark chocolate that I am aware of.

July 23
A MySpondylitisTeam Member

@A MySpondylitisTeam Member - a 32 ounce white chocolate ice mocha is the last vice I have left. I use it for clarity, the milk is calcium and the white chocolate as my sugar, I mean energy button and coffee for the heart benefits. It seems that everything else is bland and tasteless.

July 22
A MySpondylitisTeam Member

Hi Drew, thank you for the reply. Sounds like you are doing a great job with your nutrition!
There is a growing body of evidence that Glp-1’s lower inflammation. Some docs are using it off label, in very small compounded doses, to help manage inflammation. The goal is to use enough for inflammation, but not enough to cause weight loss, as I am ok where that is concerned.

July 22
A MySpondylitisTeam Member

@A MySpondylitisTeam Member, I am not sure what one would gain by taking GLP-1 in addition to Remicade. I am assuming you are questioning taking GLP-1 to see if removing weight by taking GLP-1 would help the AS. Its a good thought. Not everyone who takes GLP-1 would benefit from it. My wife has taken it and was very successful. She doesn’t have AS but has some other forms of arthritis( hereditary) that she knew she had to lose the weight to minimize the discomfort arthritis caused her in her feet and elsewhere. I needed to
lose weight to help my AS. I didn’t use GLP-1. It might have been useful depending upon your body’s metabolism. I chose to eat a little more scientifically. I chose foods and amounts that I would still get a benefit from. For example, with AS, my heart and stomach have been giving me problems. I started with multivitamins for energy and metabolism.(GNC-megamens- they have them for women too), Instead of coffee in the am, I eat a small handful of Dark Chocolate expresso beans. I get the benefit of good fats with a caffeine kick in the am! small
pieces of dried pineapple are for my stomach. These are just a few changes I made. I lost weight doing this. Now I can’t fit into my clothes. So Glp-1 may be a path for some, others not so much. We still don’t know about what happens with GLP-1 in some patients. If you take GLP-1 be careful!

July 22
MySpondylitisTeam

That's an interesting question! Unfortunately, there isn't enough research or community data available to provide reliable information about microdosing GLP-1 medications specifically in the context of ankylosing spondylitis or spondyloarthritis.

For managing spondylitis, the treatments with the most evidence behind them Show Full Answer

That's an interesting question! Unfortunately, there isn't enough research or community data available to provide reliable information about microdosing GLP-1 medications specifically in the context of ankylosing spondylitis or spondyloarthritis.

For managing spondylitis, the treatments with the most evidence behind them include:

- NSAIDs (like ibuprofen or naproxen) for pain and inflammation
- Conventional DMARDs (like sulfasalazine or methotrexate)
- Biologic DMARDs such as TNF inhibitors (e.g., adalimumab) or IL-17 inhibitors (e.g., secukinumab, ixekizumab)
- JAK inhibitors (like upadacitinib or tofacitinib), which are taken as oral pills

It's always best to speak with a rheumatologist before exploring treatments outside of established guidelines, as some approaches may interact with or affect your current spondylitis management plan.

July 19

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