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A MySpondylitisTeam Member asked a question in Movement, Activity and Exercise group 💭
Colorado Springs, CO

I am still undiagnosed although 4 doctors agree I likely have nr-axSpa and we are still doing testing. But I keep seeing that it is supposed to get better with movement but I swear, it doesn't. There is never a time my lower back/hips don't hurt, it is just a matter of how severe. Earlier this year I was doing about 30 minutes of walking (not speed walking but not meandering either) on my walking pad no less than 4 nights/week for a few months. I was getting ready for a Europe trip; however, the… read more

August 15, 2025
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Answer Summary

Members exploring whether movement helps or hurts with nr-axSpA and similar conditions largely agreed that finding the right type and amount... Read more

Members exploring whether movement helps or hurts with nr-axSpA and similar conditions largely agreed that finding the right type and amount of activity is the trickiest part of managing chronic pain. Swimming and water-based exercise came up again and again as a gentler option, with several members sharing personal stories of returning to the pool after years away and feeling real relief. A recurring theme was the importance of starting slow, listening to your body, and not giving up even when progress feels small.

A MySpondylitisTeam Member

The swimming is highly recommended. I cant exercise at all, it takes me days to recover and the pain is terrible. All through school i was a runner, sprinter, competed, but always in terrible pain after and didn't know why, I was only diagnosed in 2004. Stretching exercises and yoga seem to help.

November 2, 2025
A MySpondylitisTeam Member

I feel best when I strength train with weights

August 19, 2025
A MySpondylitisTeam Member

Have you tried Reformer Pilates? I have found so much relief (and hope!) from doing entry level Pilates reformer classes a few times a week. I, too, suffer from extreme hip and low back pain - mostly from sitting though. I hope you are able to find some relief.

August 26, 2025
A MySpondylitisTeam Member

I take chair yoga, aerobics and a spin class.Guess it could be different for everyone. Trick is not to overdo. I have always gone to the gym. Find one with water aerobics and good hot tub! Good luck!

August 25, 2025
A MySpondylitisTeam Member

Thank you for mentioning your neck and that it was affected. I've had neck issues since my teens and we just blamed a few falls off my horse. But a couple of my doctors think its part of the nr-axSpa. I will definitely keep an eye on that once I get my butt to the pool! I feel very intimidated walking into the gym for some reason. I used to go to a gym daily many years ago, it's not like I've never done it. I think maybe my weight and knowing I won't be where I was before is affecting me. I am trying to find a friend to go with me, at least for the first time. My preteen does have a membership as well but we are both going in"blind" so it'd still be nice to have someone with us. But I realize it's all excuses and I just need to get there and do it and I'll be fine!

August 18, 2025

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