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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 4, 2025
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A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Yes, i heard about this up and coming a couple years ago from another member. And there's a new one on the way in the US as well. As with all of them, it targets a specific type of cell/receptor etc etc blah blah blah😒.

The thing to keep in mind is this: your body is responding to a stressor, likely several. A few lucky autoimmune patients only have one antagonist. An example is unrealized klebsiella pneumoniae bacteria hiding "dormant" in the gut. Once discovered and eradicated, problem solved. Most of us have several. Each will elicit a different molecular response, not always the same in each patient even if it is the same stressor.

Everything unique to each body including, but not limited to, diet, environment, past experiences, past diseases, emotional stress, etc etc will affect how a given body responds to a given experience/encounter be it human or weather or otherwise. It can be textiles in bedding, dust in atmosphere, foods, anything.

Humans produce a few hundred different types of inflammatory molecules and like all meds of a specific nature, like this one. they only target one or a class of a type. If the antagonist that creates the molecule is not eliminated, the body will adapt and eventually produce a new type of inflammatory molecule that causes problems. This is one reason why biologics often dont work for very long on most patients. The source of the antagonist must be identified and eliminated to stop the disease process.

For simplicity sake, consider cigarette smoking. Do you really think a drug can be produced that will stop the body's negative response to that? Nope. If people dont like the negative consequences to cigarette smoking, they must quit smoking. Cough drops will do little good. Thats just a simplified method of understanding cytokines. Learn your trigger(s), get rid of the triggers. Easier said than done, believe me, i know.

Deep testing other than what conventional medicine offers is very helpful. So is psyche therapy to evaluate one's life, past and present. Watch the upcoming docuseries free online by Zonia, "Unbroken Decoding Autoimmunity" that i posted a link to recently for greater understanding and direction. It helped me pave my way enormously. I subjectively say that i am 80% cured. The rest is repair from structural damage done long ago. If you want another link to the series i mentioned, let me know. Yours in better health P 😌🙏

August 4, 2025
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Parasympathetic forever is indeed the ultimate goal and i have no problem using every non medicated means as sensible for my body as possible. Multi modal is almost always best. Im still not so sure WBV is a good idea for me and i keep forgetting to ask some of my drs who look at my MRIs about it🤦. One of my functional medicine practitioners brought up a new nethod i havent heard of to me, alpha-stimulationm targeting nerve receptors. Although, now that i think about that i suppose i need to verify that one is safe for nerve sheath tumors. Ugh, if it's not one mysterious challenge it's another. 🥴Yours in better health P 😌🙏

August 7, 2025
A MySpondylitisTeam Member

@PitacThank you, dear Pitac, for your well-founded answer! Our scientists want to kill damaged cells. This is the wrong way to go again. No medicine is needed for healing. Cannabis and other supportive medications can help. The way is only to understand the functions of the body and listen to the body. Eliminate the main stressor. I suppose there are many ways to heal! After all, inflammation can be eliminated both by psychosomatics and by diet. We need to tune our bodies into parasympathetic mode. Then the body manages the diseases on its own. ---------------- Děkuji milá Pitac za fundovanou odpověď! Naši vědci chtějí zabíjet poškozené buňky. Po je opět špatná cesta. Na uzdravení není potřeba žádný lék. Může pomáhat konopí a jiné podpůrné léky. Cesta, je pouze pochopit funkce těla a tělu naslouchat. Odstranit hlavní stresor. Předpokládám, že způsobů uzdravení je mnoho! Vždyď zánět se dá odstranit jak psychosomatikou, tak i stravou. Je potřeba naladit naše těla do parasympatického módu. Pak již tělo zvládá nemoci sám.

August 7, 2025
A MySpondylitisTeam Member

Seniprutug is the name

August 4, 2025
MySpondylitisTeam

Currently, there are no known cures for spondylitis (AS). Be very cautious about claims of "cures" from any country, as these could be misleading or potentially dangerous. The established treatments focus on managing symptoms and slowing disease progression.

Here are the proven treatment approaches for AS:

• NSAIDs for Show Full Answer

Currently, there are no known cures for spondylitis (AS). Be very cautious about claims of "cures" from any country, as these could be misleading or potentially dangerous. The established treatments focus on managing symptoms and slowing disease progression.

Here are the proven treatment approaches for AS:

• NSAIDs for pain and inflammation
• Disease-modifying antirheumatic drugs (DMARDs)
• Biologic medications like TNF inhibitors
• JAK inhibitors
• Physical therapy
• Surgery in severe cases Treatment success is measured by:
• Improved back flexibility
• Better posture
• Reduced symptoms
• Fewer complications
• Enhanced ability to perform daily activities

If you're interested in new treatments, always discuss them with your rheumatologist first. They can help evaluate any claims and ensure your treatment choices are safe and evidence-based.

August 4, 2025

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