Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MySpondylitisTeam Member asked a question 💭
Columbia City, IN

Anyone else dealing with acute pain on top of chronic pain?
I've been dealing with the chronic pain of AS for a while, but recently I’ve been hit with Shingles and Post Herpetic Neuralgia. It’s overwhelming and harder to cope with than usual. Just wondering—how do others handle these spikes? Any tips or shared experiences would really help.

May 12, 2025
 · 
Reactions
A MySpondylitisTeam Member

@A MySpondylitisTeam Member I’m going to try some of your suggestions. I’ve done Epsom salt soaks but have not used that quantity of salt. Likely mine has been too diluted to help. Thank you

May 12, 2025
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. That sums up how I’m feeling these days.

May 17, 2025
A MySpondylitisTeam Member

Not enough pain were you can't move but you force your self

May 15, 2025
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. I really do feel badly for everyone who comments on their limited abilities, for whatever reason, to do some of the therapies i mention. I dont mention what i have and can do to make others feel bad or disadvantaged. I mention them knowing some people can do them and some cannot for various reasons. But those who can might not think of it or do it in the quantity that i do, such as a full small sized bag of epsom salt instead of just a cup or less. That said, i dont respond without awareness or concern for those who are less fortunate in any way than i am. And, yes, it does hurt me and make me feel badly when others point out their disadvantages. Just another push added to my own pain sensitivities 😥

May 13, 2025
A MySpondylitisTeam Member

@A MySpondylitisTeam Member you have to have all of that to do it..on disability not alot extra for hottubs etc..

May 12, 2025

Related Questions

View All
A MySpondylitisTeam Member asked a question 💭
London, UK

A MySpondylitisTeam Member asked a question 💭
Oklahoma City, OK