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A MySpondylitisTeam Member asked a question 💭
Manitoba, Canada

I have recently been diagnosed with ankylosing spondylitis, with a strong suspicion that what was diagnosed as fibromyalgia 30 years ago was actually A.S.

June 30, 2024
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A MySpondylitisTeam Member

I was on Humira for about 12 years (don’t recall exactly). I had good results relative to the pain, mostly flares) and progression of AS.

It did allow for a lot of skin cancer. Including major surgery for melanoma. Numerous more for squamous and a few basal cell.

Additionally, I was on one injection a month, moved to two and then weekly. And more skin cancer.

The research I found is after 5-7 years the efficacy starts to deplete. But not for everyone. If it were not for that I’d still be taking it.

To my regret I waited too long to get on biologicals. The waiting period resulted it a lot of damage to joints and tendons.

I tried another biological (Taltz) and the side effect put me in misery (IBD) for more than a year.

I’m 72 and taking a low dose of prednisone daily. My Doctor, who is the best I’ve had (I’ve lived in 14 places coast to coast) is advocating an IL-23 inhibitor. He would also advocate going on a biological as soon as possible. He also has an autoimmune condition.

July 5, 2024
A MySpondylitisTeam Member

Thank you!

July 16, 2024
MySpondylitisTeam

For information and experiences with biologics, including adalimumab, you can refer to the resources provided on MySpondylitisTeam. Here are some key points:

- Dosing and Insurance Coverage: It's important to discuss with your doctor about the dosing schedule and insurance coverage for biologics like adalimumab
- Side Show Full Answer

For information and experiences with biologics, including adalimumab, you can refer to the resources provided on MySpondylitisTeam. Here are some key points:

- Dosing and Insurance Coverage: It's important to discuss with your doctor about the dosing schedule and insurance coverage for biologics like adalimumab.
- Side Effects: Make sure to talk to your rheumatologist about potential side effects and what to expect.
- Sticking to Treatment: Discuss any difficulties you might have with sticking to your treatment regimen and seek advice from your doctor.

For more detailed experiences and advice, you can join MySpondylitisTeam to connect with others who understand life with spondylitis and share their stories.

June 30, 2024

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