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Members shared how deeply isolating chronic pain and mobility issues can be, with many describing the frustration of having to cancel plans,... Read more
Yes, it is because I don't feel good alot,so just want to suffer alone, sometimes I can force myself away from that but it's really hard
Yes. I am so limited on doing much of anything. And it is so difficult to make plans because I never know if I’ll be able to keep those plans or cancel them. Plus, it is difficult for others to understand what I am dealing with on a daily basis.
Yes, I do find it isolating; but, I work very hard to not allow that to happen. I have opened up to a couple special friends about how bad the pain is and how I don't want to be a burden to them. Surprisingly, they see it as less of a problem than I do.
Dealing with pain and mobility issues can indeed feel isolating. However, connecting with others who understand your experiences, such as through MySpondylitisTeam, can help alleviate feelings of isolation. This community offers support and understanding, sharing both joys and challenges without judgment. Additionally Show Full Answer
@A MySpondylitisTeam Member I understand that. It’s been a while since I have went into a store and physically shopped. I always place my order online and pick it up where they load it up for me. I do it often so there is never a big order to unload and bring into the house.
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