Yes, it is because I don't feel good alot,so just want to suffer alone, sometimes I can force myself away from that but it's really hard
Yes. I am so limited on doing much of anything. And it is so difficult to make plans because I never know if I’ll be able to keep those plans or cancel them. Plus, it is difficult for others to understand what I am dealing with on a daily basis.
Yes, I do find it isolating; but, I work very hard to not allow that to happen. I have opened up to a couple special friends about how bad the pain is and how I don't want to be a burden to them. Surprisingly, they see it as less of a problem than I do.
@A MySpondylitisTeam Member I understand that. It’s been a while since I have went into a store and physically shopped. I always place my order online and pick it up where they load it up for me. I do it often so there is never a big order to unload and bring into the house.
I also find that having a Handicap Placard gets me many looks and glares from other people because they cannot "see" how much I hutt or understand how a task may start vs how it finishes are two different things. When I grocery shop, I can no longer lift a flat of water or carry it even into the house, and as convenient as a six pack might be, multiple trips for multiple 6 packs of water aren't possible either. I also find it hard to shop from start to finish at the same pace. I live alone and do not have help. All my family live far away. It's hard to always ask strangers for help.