Should Be Restart Simponi If I Had A Bad Infection? It Works So Well For My Many Pains! But I Am Scared 😟 F Another Infection. Advice? | MySpondylitisTeam

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Should Be Restart Simponi If I Had A Bad Infection? It Works So Well For My Many Pains! But I Am Scared 😟 F Another Infection. Advice?
A MySpondylitisTeam Member asked a question πŸ’­

I was on Simponi infusions for about a year when I developed a bad intestinal infection. Long story short…I had about 10 inches of my colon removed about 2 months ago. Of course I had to stop taking Simponi for the aurgery. Now all of my pain is back and Sore am supposed to restart my infusions. I am worried about another infection. Does anyone have any advice for me?

posted November 10, 2023
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A MySpondylitisTeam Member

Stay off of ALL meds. I have taken MANY different things for my pain and, have since 2012 stopped everything but blood pressure meds. I have indulged in so much research on medication and have found that "no matter what the drug is,,,it causes some other type of reaction (physical or mental). I only take tylenol with 12 hr arthritis meds (together) when the pain is unbearable. But if you have read my profile,,,,,,you know I have been dealing with pain for 40 yrs. I have learned that pain is "just a part of life" ! To me my normal every day pain level is about a 5 or 6. To someone who has not dealt with pain as long as I have,,,,that same level to them would probably be 10 or higher.

posted November 15, 2023
A MySpondylitisTeam Member

That was the first one, but I ended up in the hospital for 8 days, then took 3 strong antibiotics for two months and then had to go in for 5 more days to have surgery.

I also tore my calf muscle before all of that started.

posted November 11, 2023
A MySpondylitisTeam Member

Is your rheumy ok with you re-starting it? Did you have any other terrible infections while on it during the year you were on it or was this the first one?

posted November 11, 2023

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