When I have a flare I feel fatigued, no energy and people just annoy me. I lay in my bed in the dark with door closed and blinds closed too. And I tell my family to go away.

I think my neck pain is the worst out of everything...? It makes me wanna cry! I have to try & keep busy, but ... not overdue it!! Delicate balance, as we all know;) When I'm alone it can be bad, but ... I'm never alone anymore, which can be just as bad ~LOL!!! Boys are all tucked in, so ... time to relax a li'l before bed;) I do enjoy my quiet time now. (((((...sigh...)))))💙💙💙💙💙💙💙❤❤

Very similar for me. I experience agonizing neck and jaw/facial pains resulting in very bad headaches also.

Oh my goodness @A MySpondylitisTeam Member! Your flare sounds miserable. Zophran is wonderful for nausia. I also sip Lemon tea and nibble on a slice of either dry or very lightly buttered toast. Ice helps with inflammation followed with heat that feels great and allows the blood to flow more freely. I actually have a heated mattress pad on my bed that is a God send to me in the winter. Have you tried Tumeric Curcumin for muscle aches? It's natural and helps me a great deal. As with everything, it doesn't work for everyone. I believe Pam said it raises her blood sugar so she had to quit taking it. Most of my friends take it daily with no problems. You might try a small bottle to see what it does for you. God bless you Sherry. I hope and pray you'll be feeling better soon. With love...QBC

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A MySpond...

Thank you everyone for your answers. So muscle spasms and nerve pain sounds like it’s really common. I usually get very quiet too.
Normally my husband and I are always goofing around but thise times he knows to be nice and leave me alone.
It is tough but it’s nice to talk to peoplethat understand.