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A MySpondylitisTeam Member asked a question 💭
Saratoga, NY

Eyes… does anyone find issues with their eyes/ sight when they have a flare up? My vision goes from 20/20 to very bad hour by hour. They just started me on a steroid eye drop and another eye drop to see if that assists. It’s rather unnerving to having your vision go and come back or to suddenly only see outlines.

February 10, 2023
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Answer Summary

Members strongly confirmed experiencing vision problems during flare-ups, describing symptoms such as excessive tearing, double vision,... Read more

Members strongly confirmed experiencing vision problems during flare-ups, describing symptoms such as excessive tearing, double vision, blurred vision, painful dry eyes, matted eyes upon waking, and in some cases only being able to see outlines even with corrective lenses. Several members shared that their vision issues coincide with upper spine and cervical inflammation, with one noting their vision returns to normal between flare-ups, while others mentioned related symptoms like eye fatigue, pain behind the eyes, random ear pain, and floaters. A recurring theme was the recommendation to see an ophthalmologist rather than an optometrist for proper diagnosis, with members discussing treatments including steroid and wetting eye drops, Xiidra for meibomian gland dysfunction, and the increased risk of cataracts and uveitis in people with autoimmune conditions.

A MySpondylitisTeam Member

Hi Angie, me too, both ears and eyes. Right now I am taking xiidra for what my opthalmologist thinks is Meibomian Gland Dysfunction (MGD). My ears seem to hurt randomly. Very strange, I see my ENT next month and plan to ask about it.

August 28, 2024
A MySpondylitisTeam Member

Hi, I am having trouble with my vision as well. My eyes get fatigued and I get pain behind my eye. My right eye has begun to have blurred vision just this week. So frustrating 😞

June 29, 2024
A MySpondylitisTeam Member

Yes, mine water like I have been crying. And double vision for a while. I always carry wetting drops and visene.

February 10, 2023
A MySpondylitisTeam Member

Eye pain is common with autoimmune conditions. Inflammation can go body wide and eyes are very prone to it, its called uveitis. Blurry vision is common with cataracts. Eyes of autoimmune conditions and light color eyes (blue tones) are prone to cataracts sooner than later in age. I had mine teplaced with artificial kenses at 57. The dryness, pain, and blurry/bad noght vision began about 50. See an Opthalmologist, not an Optometrist for correct diagnosis and auggested treatments.

February 17, 2025
A MySpondylitisTeam Member

Absolutely. I have this problem every flare up and my flare ups have been lasting longer

August 26, 2024

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