Did Ankylosing Spondylitis Change You Other Than Physically? | MySpondylitisTeam

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Did Ankylosing Spondylitis Change You Other Than Physically?
A MySpondylitisTeam Member asked a question 💭

Does anyone else feel like their personality and outlook on life has changed?
I put a smile on my face but inside I just feel so sad. Like I’m just a shell of who I used to be. Like the old me is gone. Most days I am okay but some days it is such a struggle to do anything like chores or things I use to enjoy. I don’t know maybe I’m just having a rough day. I know talking to my fellow Spondylitis sufferers understand. 😔😟

posted February 6, 2023
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A MySpondylitisTeam Member

I definitely have those days, more often than Id like to. This is a tough disease for sure. Hugs

posted February 14, 2023
A MySpondylitisTeam Member

Hugs to you! I really do understand. Today I didn't want to get out of bed, but I'm glad I did, because it's turning out to be a good day.🌻

posted February 13, 2023
A MySpondylitisTeam Member

100%..... it's like I'm a ghost. I miss me.

posted February 11, 2023
A MySpondylitisTeam Member

Oh Marnee.
What a valid question.
My mental health had taken a beating as well as the physical.
Trace could listen to all, help all, and now, Ive had to explain endlessly that sometimes I cope, sometimes I don't.
Being a singer (by trade) and looking ‘ ok’ makes it very hard for anyone to understand. Thats why I love this site.
We all, understand each other. 🤍🌻

posted February 8, 2023
A MySpondylitisTeam Member

I feel like this daily.. especially when I'm experiencing more pain and/or stress. I don't feel like myself. I can't even describe who or what I feel like. I appreciate my husband taking me as I am. He also gets brain fog, so he understands. I was going to ask this question! I'm glad there are others that do understand
The fatigue and brain fog does not help. My personality has definitely changed and it's worse with the 2 conditions as well as pain goes.

posted February 6, 2023

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