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What Do You Look Forward To Accomplishing In 2023?

MySpondylitisTeam asked a question 💭
San Francisco, CA
January 24, 2023
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A MySpondylitisTeam Member

Am trying to get myself back in the habit of doing some aquatic therapy this winter. Cartersville GA, which is near me, has a really nice senior aquatic center and the silver sneakers part of my insurance pays the membership. So..no excuses. Just do it!! Wish I had a pool buddy. We could push each other to go .lol
Am afraid if I don`t do this I may not be mobile by spring. And I love the pool and lake. So, got to do it.

February 3, 2023
A MySpondylitisTeam Member

I had a good way of controlling my Spondlitus was I mind no bodyelse matters.What that means is what everybody say to u do what u want within reason and don't let it let it beat you.I got told by a doctor I be in a wheelchair in 2year that was when I was 32 now I'm still working at nearly 69 so you can control it yourself it's not what doctor tells you it's your mindset

March 29, 2023
A MySpondylitisTeam Member

Beach days, continue to volunteer and try to enjoy every day, good or bad.

March 30, 2023
A MySpondylitisTeam Member

Getting my independence back

February 11, 2023
A MySpondylitisTeam Member

Hi Mamaw, Your reply to another hero was so on spot. I find my doctors ask "so how are you managing"? It's such a general question I was not sure what they wanted to know. I'm at the end of my career due to this, 28 years as a CNA and RMA. Not retirement age. I'm unable to do it, the lifting, turning, and bathing, but my heart has never stopped wanting to assist. Now I am working PRN in a hospital but the wage is so low. I still have patient responsibilities which I take seriously. I could work at fast food, no. Long hours, my fatigue is overriding my life balance. I have good "moments". I'm so thankful I do and feel for all who do not. I find myself pacing my life with the steps to get through a day. I work and head to the ER entry at 6:45 AM 12-hour shift, and depending on how pain and stiffness dictate I leave at 3:30 AM to walk that far. I understand it takes time but many here had RA like me years before a diagnosis that was credible happened. I support myself, live alone, and have no assistance, but I do have a dog I love. He's my "little". I thank you for letting me just vent, talk, and share. Thanks again for doing the same. your insight is valuable.

February 9, 2023

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