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I am having so many different symptoms now. I would appreciate your input. TIA

August 22, 2022
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Answer Summary

Members shared that managing spondylitis often requires a multidisciplinary team, with most seeing a rheumatologist as the primary coordinator... Read more

Members shared that managing spondylitis often requires a multidisciplinary team, with most seeing a rheumatologist as the primary coordinator of care alongside pain management doctors, primary care physicians, and specialists like cardiologists, neurologists, and gastroenterologists as needed based on medication side effects or related conditions. Several members found significant relief through non-medication approaches including physical therapy, massage therapy, acupuncture, and chiropractic care, with some choosing to avoid immunosuppressive medications in favor of these alternatives. A recurring theme was the critical importance of finding compassionate, supportive doctors who truly listen and advocate for patients, with strong encouragement to leave any provider who is not helpful or understanding and keep searching until you find the right fit for your care team.

A MySpondylitisTeam Member

I see my primary care, pain management and rheumatologist. I am looking into seeing a therapist as well.

August 26, 2022
A MySpondylitisTeam Member

I see my Rheumatologist and my Pain Management Doctors

August 25, 2022
A MySpondylitisTeam Member

I find physical therapy and acupuncture really help me and reduce my reliance on NSAIDs for pain. Recently, I began to try mediation.

I also have a rheumatologist (and second opinion rheumatologist), cardiologist, gastroenterologist, and neurologist.

I know that this sounds like a ridiculous number of providers. But I encourage you to build your team and get admitted into their practices. This way you can call on them to see you when you need them.

You will find your way! It takes time, but we all get there. Kind regards, Sharon

June 9, 2023
A MySpondylitisTeam Member

For peace of mind for myself look for as much information as possible,even You tube in u.k.it’s a very hard condition to under stand always seek professionals advice ,consultants steer clear of people telling you Negative comments of doom and gloom if you have this chronic condition,surrond your self with Happy people with positive out looks don’t over think problems get help it’s out there .👍Rob

August 28, 2022
A MySpondylitisTeam Member

I have a PCP but she really doesnt do much for the AS. I have/had PT, Rheumie, neuro, pain management specialist, and mental health counselors/psychiatrist. I also have an endocrinologist because I have Hashimoto's Thyroiditis also.

August 24, 2022

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Los Angeles, CA