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When Others Don't Understand

When Others Don't Understand

Being newly diagnosed, explaining this disease is difficult and at times awkward. My parents especially don't understand (they're in their 80's, still doing phenomenally well), Mom thinks I'll heal up and get over it. I've always lived in a culture of pushing yourself to get the job done, that if you're too tired or hurt, you're weak, lazy, not strong enough mentally. I find myself frustrated at myself for those reasons but am learning to be ok with resting when I need to. But helping those in… read more

A MySpondylitisTeam Member said:

Im trying to figure this out too. Im grateful my dad also has this and understands. What you're experiencing must be so hard and im sorry. Im trying to remember to have patience with myself and the people around me who don't understand. One thing is for sure, dont let them walk all over you because they don't understand. You keed to stand up for yourself and listen to what your body is telling you. If they dont like it, you can try educating them about it but some people just can't understand then sometimes sick people dont look sick.

posted about 2 months ago
A MySpondylitisTeam Member said:

Hope your Tuesday is going well. I'm feeling better than yesterday. Not dizzy. Looks like the meds will work. Don't give in to any negativity today from anything or anybody. Just keep a smile on your face and a song in your heart. Go outside & listen to nature. I'm getting ready to wash our dishes. We have a dishwasher but, I prefer to do them by hand. Been doing it all my life. Pamela loves it. Stay strong today & kind. Peace.

posted about 2 months ago
A MySpondylitisTeam Member said:

Agreed....water therapy helps a lot! However as the seasons change and it's getting cooler that can definitely be more challenging on your joints. But massages when tolerable are great as well. Find what works and tailor it to your life style.❤

posted about 2 months ago
A MySpondylitisTeam Member said:

Hey Amy! I can totally relate to your situation. What helps me from day to day is to stop judging and comparing myself to people who don't have your issues. Older or not we are all uniquely and wonderfully made and bc we have been taught to push beyond measures mentally and physically you tend to ignore the signs your body was giving you to either slow down, rest or just Stop! So please be gentle with yourself, be kind to yourself, don't compare yourself to others bc your progress is tailor made for you.. Celebrate each good day and know that you can make it.... Stay encouraged❤

posted about 2 months ago
A MySpondylitisTeam Member said:

Thanks for liking my post. I hope you are having a good day. We have a baseball game to go to this evening. Our Grandson is 7 now & he's really liking it. Practice, practice. Have a wonderful evening. Stay safe & kind. Peace.

posted about 2 months ago
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