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What Can I Take? I Am Allergic To Most Of The Meds Made To Help.

What Can I Take? I Am Allergic To Most Of The Meds Made To Help.

So far I have found out I am allergic to most of the biologics and with having Interstitial Cystitis I am unable to do methotrexate as I am not to have Folic Acid. The only one not tried yet is Otezla and due to some of the other meds, I am on I am not able to take it. I am at a loss and I am hurting too badly to even function.šŸ˜­

A MySpondylitisTeam Member said:

Yes, a good pain specialist can most certainly help but finding a good one is the hard part and it's even harder to find a good one that is understanding. I was lucky, I found both.

posted about 1 year ago
A MySpondylitisTeam Member said:

I have had trouble with allot of the biologics, if I did get to take them, it wasn't for no more than 6 months. I sure understand, the last one I was on remicaide, my oncologist thinks it may have caused my Leukemia, I hope you have an understanding pain specialist, because that was my last advice my rhematologist gave me to get a pain specialist. Good Luck,ā™„ļøā™„ļøšŸ™šŸ™šŸ™šŸ™šŸ™

posted about 1 year ago
A MySpondylitisTeam Member said:

Aye, being on welfare makes it even harder to find a compassionate yet very knowledgeable specialist who is in the business for the actual oath they took when they studied ya know. To help people and not just a paycheck. It is a common understanding in my rural community that the affluent are treated with more time and respect than those on state aid. That is just so sad to me, you know as I would much prefer to be working from home when I am able to do so, but I have not been able to since 2001. I hate being reminded daily that the "Benefits" I am using are due to other hardworking people, some of which who have no idea just how high my pain is because I mask it all with laughter and a smile and I am weeping whenever everyone leaves the room. This is not to mention that my brain dying due to Chronic Small Vessel Ischemic Disease is only escalating my pain levels. But yet I am not able to function on the Oxycotin and my PCP who was willing to treat me is now living her own Life's Dream and I am caught in the misfunctioning of the very system to help folks like us because of the ones who chose to misuse the system and it left people like me barely hanging on to life. Right now, I was given to a new team of PCP's but yet they have been out for the past three weeks and I was told that my clinic is booked out for 2 weeks and that no PCP can see me until the 26th even with my right left big thumb joint being out of the socket--and Folks, this is my only working hand. My left hand was heavily affected by the TIA I had in 2014 that has also left me with Benign Essential Tremor. Talk about pain, I am also still trying to find help to get the rest of my furniture from my Spouses place. I moved into my own apartment because I am not going to put my mentally and emotionally and developmentally challenged husband through the finality of my terminal disease. We still get together from time to time for picnics and PC Gaming, but due keep him in your prayers as he is not dealing with the change very well. I am still trying to get my Enchondroma looked at again as I am getting tired of just gaming while seated on an ice pack ya know...Being I the midst of Wildfire season makes it super difficult to go for my walks to the park daily. Where I am living we get the smoke from Canada, WA State, Idaho, and Cali, and Oregon. But even for all the bad things going on in my life God is so good to me. Have a blessed day y'all'z {{{hugz}}} <3

posted 10 months ago
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