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A MySpondylitisTeam Member asked a question 💭
St. Louis, MO

If anyone has received advice from their doctor on the covid vaccine, would you be willing to share? Also, is the advice with or without biologics use?

January 7, 2021 (edited)
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Answer Summary

Members shared varied guidance from their rheumatologists about timing COVID vaccines around biologic infusions, with recommendations ranging... Read more

Members shared varied guidance from their rheumatologists about timing COVID vaccines around biologic infusions, with recommendations ranging from scheduling vaccines within the last two weeks before an infusion when the immune system is stronger, to more recent guidance allowing vaccines just two to three days apart from treatments. Several members described the logistical challenges of coordinating two vaccine doses with their eight-week infusion schedules, often requiring extended gaps between treatments that risked increased pain and flare-ups. A recurring theme was relief and reassurance from those who had successfully received both vaccine doses without serious side effects, alongside empathy for members still waiting to start biologics due to pain and the frustrating reality of not qualifying for priority vaccination despite their vulnerable health status.

A MySpondylitisTeam Member

I had my Remicade infusion yesterday. I have them every 8 weeks. I asked the Doctor about me taking the Covid vaccine due to my immune system being weakened by the infusion. He told me to make sure I take it within the last 2 weeks before my infusion. He said that's when the immune system is getting stronger before it gets knocked down again. Hope that helps a bit. Keep asking though.

January 9, 2021
A MySpondylitisTeam Member

Well I got my 2 appts for my 2 Civic vaccines. They are a ways away. Late April & early May. Hope they work. Now I have to wait for the Rheumatologist to juggle my infusion schedule around the injections. I think it should work out pretty well.

January 19, 2021
A MySpondylitisTeam Member

Doc told me yesterday to go ahead & make both appointments & then call the infusion team with the dates. They will then make the necessary changes to the infusion dates. I have a feeling the 8 week schedule will have to be tweaked. I may have to go a little longer than 8 weeks. I've gone 9 before but, I could feel changes starting up. I hope it doesn't go much further than 9 weeks.

January 16, 2021
A MySpondylitisTeam Member

My rheumatologist advised m to take it.

January 14, 2021
A MySpondylitisTeam Member

I have Remicade infusions every 8 weeks for almost 10 years now. At first my rheumatologist said I couldn't have a vaccine injection any closer then 6 weeks before or after an infusion. That was a nightmare trying to make appointments for everything. Then about 3 weeks ago he told me the data had changed & I could do both no closer than 2 or 3 days. Heckuva change. I take my 2nd Moderna shot next Wednesday. This is a week before my original 1st shot. It took me 3 days to get there new appts. No adverse reactions at all. Hope this helps. Stay strong & kind. Peace.

April 14, 2021

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