Sorry everyone for my late responses and likes, not only bad days but this site has been really lagging ,I just got the notices for this post, most of the responses are 9 to 11 days old?! What's going on? Anyone else have this problem?

I too am thankful each morning when I awake, usually at 0330 whether I want to be up that early or not lol.
A little while after I awake I hear baby birds chirping outside my window and when I hear them I know it will be a good day full of faith and hope that all will be good.

Mornin' all

Partaking in the Big 3 today, not all Goodies but life at its best, right? Here goes ...
1. I, too, woke up this morning again. The sun is shining, birds are chirping and the weather is gorgeous. Strange having company at home as my husband is working at his computer currently. So glad he is able to continue working. Many many have lost their jobs - I am extremely grateful.
2. Even though I have been diagnosed with nr-AxSpA I've always felt something else has been affecting me as well. My joints are breaking down at a quick rate and the pain is unrelenting at times even with treatment, currently biologic infusions. I've tried many biologics that just don't help. So ... sought help from yet another specialist - Dr. Saperstein in Phoenix - Complex Neurology. He diagnosed me with EDS. Not happy about it, but not surprised either. I knew my sympathetic nervous system was taking a hit. Although treatment is not different than what I am now undergoing, I know a little bit more about this puzzle of a body. Yay(?)
3. We are hunkering down and physically distancing so as to remain well. I don't know of anyone in my circle of immediate family or friends who has been afflicted but empathetically feel for those who are. I cannot imagine the pain and anguish those are going through having lost a loved one to this virus. We as a collective need to be and do better in this world to protect life for every living creature. Money and greed is eating away at every level of society. My heart is breaking. I pray that everyone has the strength to overcome what is happening currently.

Sending vibes of health and love to you all

Becky

@A MySpondylitisTeam Member

Hey hey hey

Good morning!

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A MySpond...

I admit guilt! Many days I do not visit this site because I am just too tired and cold from uncontrolled pain to the point I cannot even hold my phone to just read your messages. My responses to all of you have not always been timely I admit, but you all are in my daily thoughts and prayers. Now I am done with my whinging, I can honestly say this. Have the best day you are able, stay as healthy as your circumstances will allow and know that I care. A lot! 💖🤗🙏🌞