I feel your pain, so sorry
I have Fibromyalgia and today a total flare day. Take a shower and keep warm, helps muscles relax. Rest read a good book or put on a good movie. Tomorrow will be a better day ♡

Margie Bower
I think you are a little confused here, my spondylitis team is an online self help /support group for people with spondylitis type illness things like arthritis in the spine, fibro myalgia and As, ankolysing spondylitis it's not another illness.
I started getting severe headaches when I was 25, my doctor sent me to the ear nose and throat department at the hospital who could find nothing wrong with me until they did an X Ray of my neck, they told me that I had spondylitis in my neck, which was a problem with the bones. A few years later I began getting really bad pain in my lower back and went to my GP, he told me that it was only to be expected since I had a progressive illness, this was the first I had heard of it but all they did was give me painkillers, this went on for years until eventually I got sick of the doctors guesswork with what I had wrong with me and asked to be sent for an MRI scan. That shown that I have spinal stenosis, which is a narrowing of the spine, I also have some bulging discs, it is most severe in my neck and lower back, where I now have constant pain. Because of the narrow places I get trapped and pinched nerves and that can affect any part of my body, I have pain in my shoulders, legs and hands which lasts for a few days at a time and makes things very difficult, I get sciatica and have to use crutches, sometimes I'm unable to use a hand at all making it impossible to get dressed or brush my hair.
I have found that going on my spondylitis team website is very informative and you can talk to people who understand what you have to live with everyday, if you have a problem you can ask others for their opinions and advice, I have found it invaluable hope you find it as useful as I have. I have found out more about my illness on here than from any doctor who all have their own reasons for wanting you to try a particular treatment, with this type of illness especially they don't seem to know much and want us to be their Guinea pigs, so many people have ended up worse after the treatment than they started with. I would not consider any surgery or treatment without asking people on here about it, you will usually find several people who have had the treatment and can tell you what it was like for them, then you can make a really informed decision about having it or not. X

If you have a specialists already ask them to give you an extended appointment to discuss matter with them in detail. Make a list of symptoms and medications with questions about how to proceed with treatment. Tell them everything you feel, any research you have tried to be involved with planning. After all is completed with visit make sure they understand you want the whole medical team approach. Ask them to conference all or review plans with Primary or other specialties, as needed. Make sure to have the other doctors names and contact information with fax numbers or other contact stuff for each, as well S yours. Sign off on consent to have medical information shared with each. Most offices have a preferred form. They will also have a time period for your consent to expire. This answer was long, I know. I hope it helps. I know most of this from being in medical field ( formerly), and now as a patient myself.

No, you are not nuts. You & only you know the level of pain you deal with. Never quit trying to do what is manageable for you. Do not give up moving even if it's baby steps.

Thank you Valerie,I do go to a pain management Dr. I have been going to
him for a while,I have talked to him about the burning in my spine
He also is aware of my Fibromyalgia and my Arthritis in my spine and hands
But when I go back to him in a month I am going to request
and ask him to send me for a MRI or a CAT SCAN, now do you think
that if I have this Spondylitisteam That it will show up on either one
of these test,? I’m so hoping that it will, because I know when my doctor
told me that I have. Fibromyalgia, he said it’s really hard to diagnose
these types of issues, It would be wonderful to go and be able to know exactly what’s what, Thank You again. Valerie 🌺