Do We Need A Sponsorship Program? | MySpondylitisTeam

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Do We Need A Sponsorship Program?
A MySpondylitisTeam Member asked a question 💭

I am an overly emotional person, just the way I’m built. I often wonder that I’m not doing enough to support everyone Is there a need for a sponsorship program? It’s just a thought. To help building a ramp, giving a physical hug or what is needed to someone I need. Does this support already exist and I don’t know of it. Most of the time here we just need to vent or get suggestions to our problems. I see some that I think need more contact and it bothers me, as I should be doing more. Any… read more

posted August 23, 2019
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A MySpondylitisTeam Member

Been here a very short time. But after reading everything, it's comforting to know there are somany of us drifting around and around on this AS boat. This place might be the place where in the sharing we confirm we are not insane, there is not enough medical information out there to get doctors steering in the right direction. AS is not something a doctor can see on the outside...only knowing how to read the radiology correctly confirms it. B27 positive is a clue, nothing more. It cannot confirm AS. I have had to learn the radiology and read my own disks. Of course, local AS support groups are great...if one can get there. I cant. So you guys are my support group! If anyone knows a really good AS doctor, no matter where, please share name. If I can find someone knowledgeable enough to have an intelligent conversation where I can learn something instead of constantly trying to teach/explain the disease would be a godsend! God bless you all. Together we can stop feeling like we're drifting and make some real headway in our immediate medical communities.

posted September 30, 2019
A MySpondylitisTeam Member

@A MySpondylitisTeam Member 2015 that would be great.I bet where you live (big enough of population) you could advertise and get people to join a group you start

posted August 23, 2019
A MySpondylitisTeam Member

The only places I’m able to find support/answers is this site and my FB group. I agree that having an in-person support group would be wonderful tho.

posted August 23, 2019
A MySpondylitisTeam Member

Thats the idea. I see people that get into a rut or are having continuous trouble I wish I could reach through my smart phone and hug them or get them some help. My energy level is as with everyone limited so going to see if existing programs can branch out. Time will tell.

posted August 24, 2019
A MySpondylitisTeam Member

@A MySpondylitisTeam Member Perhaps that need to work toward has something to do with befriending someone not afraid to speak in public while you do the background work. Just a thought.
I have a lot to give and am frustrated in not being able to give it in such a hurting world. My limitations compromise my ability to let my strengths pour forth...further compounding my limitations.
My thought is, each of us just need to connect with the right person who counters our limitation. jmho

posted August 24, 2019

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