Does Anyone On Here Have Arachnoiditis? | MySpondylitisTeam

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Does Anyone On Here Have Arachnoiditis?
A MySpondylitisTeam Member asked a question 💭

Does anyone on here have Arachnoiditis, I was diagnosed with it 16 years ago, and I am in torment. I am now on 647mcg. Intrathecal Fentanyl pump therapy, 2 oxycontin, 2 cymbalta, 2 lyrica, and 2 diclofenac, and it only shaves the edge off the pain at best.

Does anyone have any suggestions that might help?

I am trying acupuncture next as I hear it sometimes helps.

Thanks I advance,
Rick Lillard

posted June 8, 2019
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A MySpondylitisTeam Member

Acupuncture got me walking when I could not stand up without screaming. Try “cupping” where you can put suction cups wherever you have pain to increase circulation. It eases my pain a lot. I lie down with 10 cups on for 45-60 minutes. You can buy them on Amazon, I’m told. I bought mine from my acupuncturist. I can now do my housework a total of 3 hours a day.

posted June 18, 2019
A MySpondylitisTeam Member

Thank you, I have.

posted June 26, 2019
A MySpondylitisTeam Member

Hey Rick I am so sorry to hear about your pain. I am praying 🙏 that acupuncture gives you relief. If you have access to a pool or hot tub it could help. It has helped me a lot.

posted June 20, 2019
A MySpondylitisTeam Member

Wow, really exciting news, congrats. Thanks for the note.

Rick

posted June 18, 2019
A MySpondylitisTeam Member

It is a leaf from the Mitragyna speciosa tree which is ground up, dried and swallowed. For many people it gives pain relief and lifts their mood. I use it for relief from Irritable Bowel Syndrome and it works great for that.

posted June 18, 2019

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