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A MySpondylitisTeam Member asked a question 💭
Dee_witt@hotmail.com

Is there ANY part of our body NOT affected by this if you have it in your neck, mid back and low back?

March 17, 2019
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Answer Summary

Members opened up about how spinal conditions like ankylosing spondylitis and spondylolisthesis affect nearly every part of the body,... Read more

Members opened up about how spinal conditions like ankylosing spondylitis and spondylolisthesis affect nearly every part of the body, explaining that because the spine is the central hub for all nerves, damage or inflammation there can cause pain, numbness, weakness, and nerve issues radiating from the neck and shoulders down to the fingertips, hips, legs, and even toes. Several members described how back pain changes the way they walk, which then throws off alignment in the hips, knees, and shoulders, while others shared heartbreaking stories of being bedridden, losing access to pain medications, facing mobility limitations due to fused spines or paralysis, and encountering healthcare barriers related to body size that prevent proper imaging or treatment. A recurring theme was the isolating and all-consuming nature of chronic spinal pain, the frustration of doctors withdrawing necessary medications, and the resilience required to keep going despite feeling unseen, unheard, or physically unable to fit into a healthcare system not designed for their needs.

A MySpondylitisTeam Member

It seems that the spine is the center of the body and if you have it all the way down the spine then it affects everything else that comes off it through the nerves that get pinched and trapped in the discs of your back. That's my understanding of it but I'm still learning after having it for more than 30 years.

March 18, 2019
A MySpondylitisTeam Member

Yes if it is polyarthropathy

March 18, 2019
A MySpondylitisTeam Member

Back pain can have an effect on the rest. When mine starts pinching, it hurts to move anything, even my hands. But if you're low back hurts, you may walk differently, which interferes with the hips and the legs etc, that also had an effect on your shoulders. When I started a chiropractor years ago, my one shoulder was lower then they other, due to the way I walked because of the back pain. If I do something to aggravate my low back, that's a little different. But it messes with upper back and neck for me. Hope this helps. Soft hugs!!
Darla-VA

March 18, 2019
A MySpondylitisTeam Member

Deep,i think it answers this up on q@a .They still in infancy really trying to understand pain

March 18, 2019
A MySpondylitisTeam Member

Hi Deep,
I’m not sure that I could answer that. My lower back causes me a lot of pain, Middle and neck not as bad. It depends on what I do on a day to day basis.
The other issues I have affect my whole body,
Sjogrens is a connective tissue disease, affects the whole body.
Wegners is a rare form of Vasculitis that affects the small and medium blood vessels throughout the body. So combined with the RA, Ostio, and what ever form of Spondylitis I may have, it’s hard to tell what’s causing what sometimes !!

March 18, 2019

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