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A MySpondylitisTeam Member asked a question 💭
just_jayne01@hotmail.com

It begins as I'm settling to sleep and causes me so much distress. The only way of relieving it is to either stretch out or curl up in a ball, I'm in tears with it sometimes. Last night was different in that my legs felt on fire too!

February 3, 2019
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Answer Summary

Members overwhelmingly identified the original poster's stretchy, uncomfortable sensations in arms and legs at bedtime as likely restless leg... Read more

Members overwhelmingly identified the original poster's stretchy, uncomfortable sensations in arms and legs at bedtime as likely restless leg syndrome, with many sharing they experience similar symptoms that interrupt sleep and create an overwhelming need to move or stretch. Several members described medications that have brought them relief, including quinine, Sifrol, mirapexin, codeine, and muscle relaxants, while others manage symptoms with heat therapy, TENS machines, pillows between the legs, or topical creams like Voltarol. A recurring theme was the frustration of being exhausted yet unable to settle due to these sensations, along with encouragement to speak with a doctor for proper diagnosis and treatment options.

A MySpondylitisTeam Member

Yes @A MySpondylitisTeam Member that's exactly how I feel! I'm going to mention it when I go to the doctors in a fortnight (good job I'm not in agony then eh? That's dripping with sarcasm by the way!) Touch wood it only happens every now and again, but it's awful.

March 30, 2019
A MySpondylitisTeam Member

That sounds like Restless Leg Syndrome.
My G.P. prescribed quinine 300mg at night and touch wood it's worked!!

February 4, 2019
A MySpondylitisTeam Member

is that where you feel like you need to stretch uncontrollable for hours then yes i have that and yes i suffer from restless leg sydrome. i had to be taken off my med for it. clonipen cause it was effecting me the wrong way

March 30, 2019
A MySpondylitisTeam Member

Exactly @A MySpondylitisTeam Member!

March 17, 2019
A MySpondylitisTeam Member

I get this sometimes also. I think it is due to some type of a deficiency

February 26, 2019

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