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A MySpondylitisTeam Member asked a question ๐Ÿ’ญ
Bicester, UK
December 11, 2018
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Answer Summary

Members shared a strong consensus that ankylosing spondylitis never fully goes away and is a progressive, lifelong disease that affects people... Read more

Members shared a strong consensus that ankylosing spondylitis never fully goes away and is a progressive, lifelong disease that affects people in vastly different ways, from manageable symptoms for years to rapid deterioration involving severe pain, spinal fusion, and significant loss of mobility or height. Several members emphasized that biologics can make a huge difference in managing symptoms, while practical strategies like anti-inflammatory diets, supplements, and avoiding unnecessary surgeries help slow progression, though the damage already done is irreversible. A recurring theme was the importance of staying positive, leaning on community support, and being cautious of cure-all schemes while using strength and resources wisely for the long journey ahead.

A MySpondylitisTeam Member

IF I were to have ONE true Christmas wish...? That EVERYone suffering from this damn disease wld wake up Christmas morning & be cured! Oh, my ... wldn't that be the best? (...sigh...) Love my family here!! Enjoy your night dear friends...!!!๐ŸŽ„

December 19, 2022
A MySpondylitisTeam Member

AS never goes away, it only stays some what manageable for some or keeps on rapidly getting worse for others as it is a lifelong disease affects people in different ways and levels I have had back pain for many years and was just recently diagnosed with AS, was shown the MRI and 4 sets of vertebrae fusing themselves together and lots more but too long of a list to name

December 23, 2018
A MySpondylitisTeam Member

Never heard of anyone getting better from it.

December 14, 2018
A MySpondylitisTeam Member

Thank you . That was my understanding but my rheumatologist seems to be implying different. So am very confused!!

December 12, 2018
A MySpondylitisTeam Member

I wouldn't have thought so it's a progressive illness which means that it will get worse with time, how much time seems to vary from person to person, some people remaining OK for longer than others, by OK I mean symptoms that are manageable and some people are in so much constant pain and have very little quality of life. You just don't know what will happen, mine was manageable for many years and mostly still is but it is getting worse and I'm getting worse symptoms than I have had before recently.

December 12, 2018

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