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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
2190 questions
Anyone Tried The New Tylenol/Aleve? I Normally Can't Take Nsaids Because Of Tummy Upset.
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

I wish lidocaine worked on me. My go-to is nontransdermal 1:1 CBD:THC cream. Non-transdermal means it does not get into bloodstream to cause a high, just works on muscle/joint tissues for pain relief.

posted March 22
Does Anyone Experience Muscle Weakness And Fatigue Occasionally?
A MySpondylitisTeam Member asked a question 💭

I'm used to the neck, back and skeletal pain. Even the chest pain which is actually inflammation of the joints where ribs meet sternum. My pain tolerance has increased but weakness and fatigue can't seem to overcome. Be still and know I am God carries me through these times. I'm 61 and still active so having to stop or rest isn't in my nature!

A MySpondylitisTeam Member

On a regular basis

posted March 25
Have You Ever Heard Of Calcium Accumulation In The Thecal Sac?
A MySpondylitisTeam Member asked a question 💭

Ankylosing spondylitis. Hla-b27 positive. Multiple fusions in neck and lower back.

I'm Getting Ablation Has Anyone Else Had This Treatment. My Diagnosis Degenerative Arthritis Spine
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

I had it and had maybe a month relief.

posted March 26
Why Is Medicare Not Covering Infusions
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

??? DNK

posted March 16
How Much Ibuprofen Can I Safely Take Per Day ?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Thank you !

posted March 25
Anyone Else Dealing With Uncontrollable Inflammation?
A MySpondylitisTeam Member asked a question 💭

I am on humira, max dose of methotrexate. Cannot cut down on steroid drops for uveitis. I tried to taper as there were no indications in my eye on Thursday. By Tuesday this week, 6 days I am in a full flare!! Now I am tapering down off oral steroid burst. Not sure what else is left. Cannot take sulfasalazine.

Are You As Tired As I Am With People Telling You What To Do Or Try... Acupuncture, Cortisone Shots, Massages.....the List Goes On And On.
A MySpondylitisTeam Member asked a question 💭
I’m Starting Methotrexate In Addition To My Cimzia. Has Anyone Else Had Any Experience On These Medications?
A MySpondylitisTeam Member asked a question 💭
Does Anyone Else Feel Like Your Just Not Listened Too?
A MySpondylitisTeam Member asked a question 💭

I am struggling, my pain is moving around my body … I took a fall in Nov shortly after knee injections… had my knee drained and mri - told wear sleeve … 3 ER trips later … drained my knee again , wicked bladder infection, pain on left side - no answers from Ct - saw my PCP - 2x - she gave a steroid pack , took about half them FU on bladder - complaining about my pain in neck / left side - waiting on a mri ( denied in August - did a round of pt) she gave me 10days of pain meds - ( which I have… read more

A MySpondylitisTeam Member

YES! PC did blood tests & said I had no inflammation. Hmmm, funny, the MRI clearly states end plate of cervical spine shows active inflammation, causing pain. I was told yesterday, by my pain mngmnt… read more

posted March 15
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