Hbl127? Mine was positive. Meaning hereditary.
When I had my gene tested I found out about other illnesses that you can inherit.
I went on disability and because of that I was able to homeschool my youngest, we were able to spend a lot of time together. I couldn't do a lot but he was one who didn't like crowds or going to many places so it worked out. I've discovered how the fascia is so important to our health and movement is needed to help the fascia flexible. I've discovered myofascial release massages and breathing exercises, Qigong and counseling to help me be kind to myself and accept my illness so I don't waste… read more
It's normal. Best doctor is You. You research everything and evaluate everything they say and doubt it all. The medical community is on a learning curve and our medical problems are are different to… read more
HI my AS warriors! I was just wondering if any of my friends here have lost your height...? I have been 6'2" since the 8th grade & always had good posture!! Now...? I am barely 4'9" tall...!!! My neck is fused & it is so very painful. I cn't see where I am going when walking, which can be very interesting ~LOL! I do my best & count each day as a blessing!! Somedays are easier than others, but ... they all suck lately. I hope y'all have a great night!!!🤔
No...still same height but tend to bend over due to flatback I think I have. Lost muscle/fat in my left buttock. So odd. Anyone else?
When I found out I had AS, I had already destroyed my body and will to be active. My ability to have a better menu was out the window.
I pushed for my family to be active but to lead by example is better than arm chairing it.
I am not shy telling of my mistakes and pushing them to be better. But it's like the stories I got about going to school in 10 feet of snow uphill 15 miles away walking after doing chores since 4am. Yada, Yada. Lol.
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