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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
2199 questions
Hi! Can Anyone Tell Me If You’d Get A Loading Dose Of Cimzia If You Have A Cough And Congestion? Thanks!
A MySpondylitisTeam Member asked a question 💭
Has Anyone Tried The "Carnivore Diet", I'm Feeling Much Better, And Losing A Lot Of Weight. Craig Christenson
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Good to hear! I am going to look into that diet. I have been on the AIP and that works well too.

posted March 30
Several People Have Mentioned Yoga As Part Of Their Routine For Dealing With Spondylitis Pain. Could Someone Please Elaborate?
A MySpondylitisTeam Member asked a question 💭

Ankylosing Spondylitis with intermittent lower back pain, sometimes in a wheelchair. Constant neck pain. A couple bouts of uveitis. Walking daily helps, but I had 2 traumatic brain injuries last year which I’m still recovering from. Broke 7 bones in my face in May, in August I had a brain bleed and subdural hematoma. I’m currently in therapy for the double vision and balance problems cause by the first fall in May. Also losing my Coonhound on my birthday in December has affected my confidence… read more

A MySpondylitisTeam Member

I’m looking at rescue groups for a small dog. I’ve always had big dogs except for the Puggle we have now. She’s my husband’s dog. They’re inseparable. 💙

We plan to move 600 mile by the end of April… read more

posted April 5
Could You Share Any Dietary Changes And Tips That Have Helped With Spondylitis?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Food is medicine or poison. Choose wisely.🍇🍰🍽

posted April 8
I Was Told I Had Impinged Nerve In My Left Leg, Did MRI ,CAT Scan And EMG The Emg Said My One Nerve In Leg Has No Responce What Can I Do
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. I have several dead nerves. If you can walk other muscles with over developed and take over the slack somewhat. If you can walk and it’s not affecting bladder or some… read more

posted March 26
What Does Everyone Do On Bad Days?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Pace yourself and cut your to-do list in half.Rest often Tylenol and heat helps me.

posted March 25
Anyone Have Cervical Stenosis? How Do You Feel About Surgery?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

I have rode in my neck from cerval stenosis and it was hard but this last surgery on my back from L5 to S1 was rough my neck is fine now

posted March 25
Has Anyone Here Been Accepted For The MAID Program For AS?
A MySpondylitisTeam Member asked a question 💭

Just read the article on fatigue, spend a good part of the week researching medication. Seems like its extreme fatigue / depression or pain. Im not willing to deal with either anymore

A MySpondylitisTeam Member

I agree. Before i was on medication i had a lot of pain but i also had energy.

posted March 22
Has Anyone Else Developed A Parkinson's Like Symptoms Over Time With Ankylosing Spondylitis?
A MySpondylitisTeam Member asked a question 💭

It tends to be more severe in the spring and summer.

A MySpondylitisTeam Member

I had my genes evaluated.I have Wilson’s gene.

My brother had been diagnosed with wrong illness/Parkinson & he has Tremors . But he does not have Parkinson’s he has Wilson’s disease.

posted April 10
I Have Had AS 33 Years. Just Started Rinvoq. Wondering If It Has Helped Anyone And If They Had Any Reactions To It. Thank You.
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

I take sulfasalazine and rinvoq. No bad experiences with the med. Sometimes I start thinking the meds don5 help a lot, as the pain still is with me, but I sure do notice a huge spike in pain without… read more

posted March 24
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