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I Found Out My Mom And Grandma Has This Same Problem. I'm Begging Her To Get That Blood Test.

I Found Out My Mom And Grandma Has This Same Problem. I'm Begging Her To Get That Blood Test.

Hbl127? Mine was positive. Meaning hereditary.

posted November 23
A MySpondylitisTeam Member

When I had my gene tested I found out about other illnesses that you can inherit.

posted November 23

What Is Spondylosis

What Is Spondylosis

posted November 23
A MySpondylitisTeam Member

inflammation of the joints, anywhere you have a bone, you can have pain.

posted November 27

How Do You Thank Your Family And Friends For Their Support?

How Do You Thank Your Family And Friends For Their Support?

posted November 22
A MySpondylitisTeam Member

I believe that everyday is a blessing too Marlene! My oldest Grandson is coming in March to live with us as well!! He's gonna be 21 tho, so ... this shld prove interesting ~LOL;) He has no place to go… read more

posted 5 hours ago

Does Anyone Get Occasional Chest Pains Associated With Spondylitis? I Get Some Pain But Nothing Severe.

Does Anyone Get Occasional Chest Pains Associated With Spondylitis? I Get Some Pain But Nothing Severe.

posted November 21
A MySpondylitisTeam Member

Yes, I have pain in chest area and at first I thought because I gained 3 pounds maybe it caused my bra to fit tighter resulting in pain. I know that’s kind of crazy thinking, but I try to reason out… read more

posted 6 days ago

What Is Something Positive That Has Happened Because Of Your Illness?

What Is Something Positive That Has Happened Because Of Your Illness?

I went on disability and because of that I was able to homeschool my youngest, we were able to spend a lot of time together. I couldn't do a lot but he was one who didn't like crowds or going to many places so it worked out. I've discovered how the fascia is so important to our health and movement is needed to help the fascia flexible. I've discovered myofascial release massages and breathing exercises, Qigong and counseling to help me be kind to myself and accept my illness so I don't waste… read more

posted November 20
A MySpondylitisTeam Member

I've heard that the best way to get healthy is to get a chronic disease and take it seriously. This has been true for me! I've lost 40 pounds since my diagnosis, but I wasn't even trying to lose… read more

posted November 21

Where/how Can I Find A Dr With Right Diagnosis.Had 3 Doctors With Different Diagnosis.

Where/how Can I Find A Dr With Right Diagnosis.Had 3 Doctors With Different Diagnosis.

posted November 20
A MySpondylitisTeam Member

It's normal. Best doctor is You. You research everything and evaluate everything they say and doubt it all. The medical community is on a learning curve and our medical problems are are different to… read more

posted November 20

Lost Height...?

Lost Height...?

HI my AS warriors! I was just wondering if any of my friends here have lost your height...? I have been 6'2" since the 8th grade & always had good posture!! Now...? I am barely 4'9" tall...!!! My neck is fused & it is so very painful. I cn't see where I am going when walking, which can be very interesting ~LOL! I do my best & count each day as a blessing!! Somedays are easier than others, but ... they all suck lately. I hope y'all have a great night!!!🤔

posted November 19
A MySpondylitisTeam Member

No...still same height but tend to bend over due to flatback I think I have. Lost muscle/fat in my left buttock. So odd. Anyone else?

posted November 19
Can Spondyloarthritis Exercise Improve Your Posture? Read more >

Progression Of Disease. How Should I Know For Sure,about What Stage I'am

Progression Of Disease. How Should I Know For Sure,about What Stage I'am

posted November 19
A MySpondylitisTeam Member

I've heard of a standing MRI, but ... dn't kw of anywhere around me! I cn't stand up straight, my back wn't let me!! I can't have a Mammogram either. I've tried. Guess I'll worry about that if the… read more

posted November 20

Do You Make An Effort To Promote Physical Activities/moderate Food Choices For Younger Generations Now That You Know You Should Have?

Do You Make An Effort To Promote Physical Activities/moderate Food Choices For Younger Generations Now That You Know You Should Have?

When I found out I had AS, I had already destroyed my body and will to be active. My ability to have a better menu was out the window.
I pushed for my family to be active but to lead by example is better than arm chairing it.
I am not shy telling of my mistakes and pushing them to be better. But it's like the stories I got about going to school in 10 feet of snow uphill 15 miles away walking after doing chores since 4am. Yada, Yada. Lol.

posted November 19
A MySpondylitisTeam Member

I promote to exercise & the one I can do with AS is water exercises 3 times a week & yes somedays are just hard to get going but I do it because I know I can walk better, and it relieves some of the… read more

posted November 19
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