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Spondylitis

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Ankylosing Spodylitis

Ankylosing Spodylitis

I have been diagnosed with ankylosing, my rhemotologist is recommending Intravenous (IV) Treatement. I would like to meet someone who has expierienced this treatment. Also if you have had this treatment with any other diagnoses
Thank you
Jeana

A MySpondylitisTeam Member said:

The first drug my doc recommended was Humira and I had a reaction to it. I have several drug allergies and I am just nervous about trying something else.

posted 3 months ago

C3-C6 Laminectomy With Nerve Root Decompression, Has Anyone Had This And Had Relief?

C3-C6 Laminectomy With Nerve Root Decompression, Has Anyone Had This And Had Relief?

I am scheduled to have a C3-C6 laminectomy with nerve root compression next week and I'm a bit anxious. Has anyone had this and did it relieve your neck/shoulder pain? I had an epidural two months ago and it helped some but still losing function of my right arm due to pain. Any feedback is appreciated!

A MySpondylitisTeam Member said:

I had c5 fusion not long ago went through the front of my neck , pain was tolerable with drugs the only weird thing that happened to me was I got frozen shoulder in my right bc of the position they… read more

posted 16 days ago

I Saw My Pain Management Doctor Today And He Said I Could Not Have Spondylitis Because I Have Rods And Artificial Disks In My Back!

I Saw My Pain Management Doctor Today And He Said I Could Not Have Spondylitis Because I Have Rods And Artificial Disks In My Back!

I have had two back surgeries and have rods and artificial disks in my back. The surgeon who did my surgeries said that I needed the surgeries because my spine and disks had deteriorated. I had one surgery in 2014 and the second in 2018. After the second surgery my pain has gotten a lot worse, and I am in pain all the time. I can't stand in one spot more than 15 mins. because it feels like my lower back is crumbling. I can only walk a short distance, in a area that has level floors, can't stand… read more

A MySpondylitisTeam Member said:

What cause you to get all the surgery some time they talk with out thinking😶

posted 10 days ago

What Happens If You Don’t Treat Your Arthritis?

What Happens If You Don’t Treat Your Arthritis?

What could happen if I (23 year old) don’t do anything about my arthritis and just fight through the pain? Will I get joint damage or just eventually go into remission?

A MySpondylitisTeam Member said:

address the issue now, it will just get worse and the longer you wait to treat the more damage you will have.

posted 3 months ago
What is Spondyloarthritis? Read more >

Hi Everyone. Do Any Of You Suffer With Nerve Pain?

Hi Everyone. Do Any Of You Suffer With Nerve Pain?

My right leg especially is an issue with nerve pain. I took med for a while but it just took the edge off the pain for a short time. If you do have nerve issues due to Spondylitis what, if anything helps?

A MySpondylitisTeam Member said:

My first symptom was actually nerve pain in my arms. The pain was so bad, i had no idea what was goin on with my body. After 3 days of severe arm pain and then my hands had swelled so big i thought… read more

posted about 1 month ago

Flares During Menses

Flares During Menses

Does anyone find that their fatigue and pain are worse during their periods?

A MySpondylitisTeam Member said:

Yes. I was misdiagnosed due to the increased pain and ended up with a total hysterectomy with bilateral oophorectomy at the age of 34. My pain got so bad after a surgery to remove polyps from my… read more

posted 2 months ago

Whats The Next Step In My Treatment ?

Whats The Next Step In My Treatment ?

Hello :)

So , I’ve been diagnosed relatively recently , and my rheumatologist tried to get me on anti inflammatories , but it has failed to work . I’m wondering abt what the next step in my treatment might be . She alluded to bio therapy , but will she put that in place right away ( it’s the 2 nd time I see her ) ? Will she try and up my dosage ? Do you guys have any idea what she’ll do ?

Thank you in advance for your answers :)

A MySpondylitisTeam Member said:

I worked as a nurse for many years, as well as living with A.S. and was Dx with it back when I was 46, after suffering a thoracic spinal fracture at work. I didn't take anything but Ibuprophen twice a… read more

posted about 2 months ago
Can a Rheumatologist Help With Your Back Pain? Read more >

What Will Life Be Like On A Biotherapy ?

What Will Life Be Like On A Biotherapy ?

Hello everyone :)

So I’ve been diagnosed and my treatment have failed to work … my rheumatologist evoked the possibility of getting me on bio therapy . I’m kind of scared of what my life might look like during the treatment …. I’m not really looking for people explaining what a biotherapy is , but more for people telling me what life is like when on this treatment .

Here are some questions I’m wondering about :

What kind of changes should I expect from it ?

Will I still be able to go to… read more

A MySpondylitisTeam Member said:

Thank you for your answer :)

Yes , that would be a good thing to reduce all the travelling i have to do , but im afraid i wont be able to take care of an appartment in my own . I still live at my… read more

posted 2 months ago
Can a Rheumatologist Help With Your Back Pain? Read more >

Anyone Have A Spinal Stimulator Implant?

Anyone Have A Spinal Stimulator Implant?

I am to have surgery for this implant on the 22 of oct..and I am nervous about the pain involved with it in addition to my back pain as they wont turn the device on till after I am healed. Any advise and experience welcome

A MySpondylitisTeam Member said:

I did have the trial and it was a wonderful outcome my pain level was decreased by at least 60 percent..As of now I havent had the permannet implant surgery yet..Had releases for surgery from my… read more

posted about 2 months ago
What is Spondyloarthritis? Read more >

How To Announce To People I Have AS ?

How To Announce To People I Have AS ?

So , I’m 19 and I’m in college . I keep meeting new people , and I always wonder how and when to tell them i have AS . I don’t want to bother them with all the details at once , so i stay elusive until they ask questions . Also , im scared as to when to tell a potential future romantic parter abt it . I just don’t want to sound either too dramatic or secretive about it , since I’m pretty open about it .

How and when do you tell people you have AS ?

A MySpondylitisTeam Member said:

My program required a lot of rugged, outdoor activities, such as back packing, rock climbing, etc. I got special treatment by being allowed to replace some trip assignments with essays, or being able… read more

posted 4 months ago
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