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I Am Starting Simponi Does Anyone Have That Treatment
A MySpondylitisTeam Member asked a question 💭
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A MySpondylitisTeam Member

I get simponi aria infusion every eight weeks. I wasn't convinced that it was working until I had to wait longer because of scheduling. My fingers were hurting something terrible so now I know t works… read more

Do We Need A Sponsorship Program?
A MySpondylitisTeam Member asked a question 💭

I am an overly emotional person, just the way I’m built. I often wonder that I’m not doing enough to support everyone Is there a need for a sponsorship program? It’s just a thought. To help building a ramp, giving a physical hug or what is needed to someone I need. Does this support already exist and I don’t know of it. Most of the time here we just need to vent or get suggestions to our problems. I see some that I think need more contact and it bothers me, as I should be doing more. Any… read more

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A MySpondylitisTeam Member

Dr Kiran Farheen, Rheumatologist
Katy, Texas
(Phone number can only be seen by the question and answer creators)

How Can I Get A Doctor To Listen To Me?
A MySpondylitisTeam Member asked a question 💭

Yesterday I had an ESR 8 test that was high off the chart high, and if you read my ct and MRI scans they all say degenerative disc, spondylosis, are present. I have had so many bone spurs down my spine I'm having problems with my neck again but I really don't want a 3rd surgery on my neck. No one seems to want to help me because they all say there is nothing they can do....now I'm having this problem with my eye and my eye doc has given me meds but says this will continue unless I get my… read more

A MySpondylitisTeam Member

You need to see an Opthamologist as opposed to an optometrist and, as someone above mentioned, a Rheumatologist. However, my Rheumi doesn't treat eye symptoms. An optometrist primarily and mostly only… read more

Does Amitryptiline Have A Reputation For Putting Weight On You?
A MySpondylitisTeam Member asked a question 💭

Has anyone gained lots of weight whilst on it?

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A MySpondylitisTeam Member

My experience is a good nights sleep and no weight increase.
I found this which might help https://pubmed.ncbi.nlm.nih.gov/872612/

Is Anyone Living With Advanced Liver Scarring?
A MySpondylitisTeam Member asked a question 💭

No doctor was monitoring my liver other than standard yearly exam type blood work and the basic test was not showing the advanced disease. My liver enzymes have always been perfect. I asked for a scan and I’m half a point from full blown cirrhosis and headed toward liver cancer. The health system is slow setting me up with specialists. My root cause of liver injury is mismanaged diabetes and possibly an autoimmune disease of Sjogren’s not yet tested for. Rheumy appointment toward end of this… read more

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A MySpondylitisTeam Member

Yoy got this..i understand about these doctors..yes i do..but you have to be your own advocate...follow up and be persistent...i hope and pray you have better results in the near future..Take Care

I Have Light Sensitivity In My Left Eye And Trouble In Same Eye With Blurriness And Night Driving.
A MySpondylitisTeam Member asked a question 💭

I wear sunglasses but it just tones it down on a sunny day compared to the right eye. I have excessive redness in which no drops alleviate. Does anyone have this problem and is it related to AS at all? Grazie

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A MySpondylitisTeam Member

Familiar with sensitivity & night driving blurrs. Opto said I have inflammed optic nerve (not Uveitis...yet?) I use pink sunglasses at night for driving glares (better than yellow lense for me) & OTC… read more

Anybody Get Weakness In Legs And/or Arms? 😊
A MySpondylitisTeam Member asked a question 💭

I seem to deal with this a lot. It can, at times, make exercise a little challenging. Also, pins and needles that come and go in different areas.
I don’t really see much literature on this. Or sites that list it as a symptom of AS.
Thanks 😊

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A MySpondylitisTeam Member

Wonderful, thanks for the idea.

How Many Different Or Other Types Of Spondylitis Is There? And If Possible, A Description Or The Difference Between Each?
A MySpondylitisTeam Member asked a question 💭

I have been diagnosed with Spondylothisis in 2006. During my research, I've noticed there is several types of Spondylitis. How many different types of Spondylitis is there?

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A MySpondylitisTeam Member

I have spondylothesis it has graduated from L345 T10, 11 cervical35 since 2006. Ive went to 3 sergions that want to do surgery but i havent done this yet.because they wont do it due to me smoking

What Kind Of Doctor Do You See For Your Spondylitis Or How Many Different Doctors Do You See For Your Spondylitis?
A MySpondylitisTeam Member asked a question 💭

I am having so many different symptoms now. I would appreciate your input. TIA

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A MySpondylitisTeam Member

Hi Sherry - After many years, I finally found a wonderful rheumatologist. That’s what you want for AS. Let the rheumatologist coordinate your other care. Mine, for example, referred me to an… read more

What Is The Most Important Thing Do You Look For In Your Doctor?
A MySpondylitisTeam Member asked a question 💭
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A MySpondylitisTeam Member

Yes it will help but if you live in an area like me here in Florida they frown very much if your pee test comes back positive. Which if you are taking CBD oil with THC it's gonna cone back positive… read more