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I was first on meloxicam, but it made my lower back numb... switched to celebrex helped for a little while? But pain is 3-6 most days. Been seeing a physical therapist for 4 weeks, to strengthen core and quads... but pain is not getting better... thinking of getting 2nd opinion on nr-axspa before trying a biologic... I also have MS...
Thanks so much for this reply!! I will look into all of this.
I'm usually a fan of Alternative and Complementary treatments and am a Holistic Healer. I'm all of my deep research and experimentation on myself I have found virtually NOTHING that helps the pain. My… read more
I was recently diagnosed with AS. I had started Celebrex 3 days before meeting my rheumatologist. The rheumatologist barely read my chart or listened to anything I was saying before telling me I need to start Humira. My inflammation markers are all down to normal ranges after Celebrex. My pain levels are drastically reduced - though I still have SI joint pain. The Dr said Humira stops the disease progression- which is why I need to start. If my inflammation is down, is the disease still… read more
Thank you so much for sharing your story
@A MySpondylitisTeam Member. Has anyone CTd your face? Several years ago extreme TMJ sent me looking for answers. Among the many consults, one ENT who did a CT told me he was surprised I wasn't in… read more
I have Active nr-axSpA and I started to have pain in my both ankle ( swelling, redness)
I take sulphasalazine 2000 mg daily !
Can diet and herbs help my Active nr-axSpA symptoms to be not active?
Thank you so much for sharing.
They gave me tramadol and up'd my Lyrica dose but it's really only taking the edge off.
Sacroiliitis is my main driver for that type of pain. The surgery helped I'm getting the other side done. I might be able to race 90yo ladies in the super market after lol.
I have Psoratic Arthritis and post herpetic neuralgia in my right leg from a bad case of Shingles. The itching feeling is strong enough to keep me awake at night. Any ideas on getting this to subside? Thanks, Becky
When I have a flare up the affected joints itch but it is like they are itching on the inside, under the skin.
Looking for some support. A brief history. I started experiencing inflammatory issues mainly in my neck around the age of 23. Took some time but we found out my father had the HLAB27 gene so was finally able to be referred to a rheumatologist around age 25 where I was diagnosed with AS. And I also have the gene. I’ve undergone many different treatments and therapies to help slow progression with Humira being the one to help the most. About a year and a half ago I began having very red eyes… read more
Hope you are doing well
I can definitely understand what you are going through. My disease started at 16
I'm 26 now. I have ankylosing spondylitis (AS) and non-radiographic axial spondyloarthritis… read more
This is great! Keep us informed of your progress.
Help - Was diagnosed with nr-AxSpa in 2023. Recently moved to a different state and can't find the great care I had in my previous state. New rheumatologist challenging original diagnosis says if damage not seen on MRI then it's not nr-AxSpa, and wants to switch my meds from Celebrex (no longer working) to Nabumetone 500mg). I don't want to take another NSAID (bloating and Celebrex didn't work). Should I get a second opinion/see a different rheumatologist before changing meds? Thanks so… read more
