COVID-19 and Spondylitis Essential Updates
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Mekeba,Greetings
It is my belief that diet is THE most important area of combating this disease. My diet mainly consists of Asian, Greek, and Mediterranean foods. I am curious, you mentioned… read more
Does anyone else feel like their personality and outlook on life has changed?
I put a smile on my face but inside I just feel so sad. Like I’m just a shell of who I used to be. Like the old me is gone. Most days I am okay but some days it is such a struggle to do anything like chores or things I use to enjoy. I don’t know maybe I’m just having a rough day. I know talking to my fellow Spondylitis sufferers understand. 😔😟
Living with such a challenge has really affected me in every way. It means a lot to have a community. Thanks everyone
I am curious as to whether anyone else is dealing with something called Exertional Compartment Syndrome related to their AS. Mine is compartment syndrome of the lower legs. Little by little over the last year, I noticed that every time I would squat down, my legs felt like they were going to pop. Then I started noticing a bulge in the compartments of my lower legs, right below my knees, both legs. Finally, a very astute and kind orthopedist did some pressure measurements in the compartments of… read more
@SherriLawler- I am going to try someone new in the next couple of weeks. My pain management doc doesn't think I need another MRI right now. My last one was in March of this year showing mild… read more
I am fortunate to have a flexible working environment that accommodates when I’m having bad days which is great but has me holding back from exploring new opportunities for fear of loosing that ability.
I understand the fear. Sending you all the support!
I applied for disability and was able to get it the first time. I made sure that I had my recent medical records from my rheumatologist and hired a lawyer. I received my disability in 8 months. It… read more
I am a newly diagnosed patient with Spondylosis. My condition is very advanced, considering I'm just 33 years old. I have a plethora of non pain related symptoms all day everyday in Conjunction with my pain and limited mobility. Is this considered an autoimmune disease too?
Unfortunately no spondylosis..my understanding and experience is osteoarthritis in your back. Fancy way of what the docs will say normal wear and tear. Autoimmune is ankylosing spondylitis and… read more
Whenever my children complain about pain or ongoing health issues, I find myself panicking. Which I know is not helpful. I wonder if testing them would make things BETTER (as perhaps we/they could be proactive in avoiding environmental triggers, how they eat and how they manage stress) or if it would make things WORSE as perhaps they would get paranoid about each little pain/ailment. What are your thoughts?
Suzannega, I am sorry to hear of your struggles and those of your children. I am sure it is difficult to know they have these issues to handle
I fully agree on your take on diet... you have no… read more
So helpful thank you. The metamucil seem to be helping my diarrhea.
I don’t know what this is. Recently coming from a pitch black room in the house and seeing light shine around the cracks of the door I was having dark elongated diagonal shadows between me and the door that moved as I moved my head. I don’t know what it is or the cause. I closed and opened each eye separately and it does it with both eyes and no the have diagonal shadows. Years ago I used to see something dark above my eyes in the dark and thought it was the frame of my glasses I was seeing in… read more
@A MySpondylitisTeam Member. I got sudden sensory deafness syndrome from taking a prescription antihistamine singular. They took it off the market since then. It lowers the immunity too much I guess… read more
Get a third opinion?