Connect with others who understand.

sign up log in
About MySpondylitisTeam
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Soma"

reset

Does Anyone With AS Take Humaira.

Does Anyone With AS Take Humaira.

My husband is 69. The doctor recommended he get on Humaira. His blood work showed no inflammation. Is this normal in some with AS? It appears that Humaira is for inflammation. What alternatives are some of you on?

A MySpondylitisTeam Member said:

I just started Humira 2 weeks ago and it's been a miracle. I was on Cosentyx before.

posted 3 months ago

I Have These Strange Red Dots That Have Been Coming Up On My Skin, Anyone Have Any Idea What They Could Be

I Have These Strange Red Dots That Have Been Coming Up On My Skin, Anyone Have Any Idea What They Could Be

They don't itch or hurt and disappear after a while but then appear again somewhere else. I have looked on Google but nothing seems to match. Some of them are quite large and others not quite as big as a frozen garden pea. I am worried in case it's a sign of something wrong with me, more than that I have already. Any ideas welcome?

A MySpondylitisTeam Member said:

Will this winter ever end I've had a sinus infection for over two month finally went too er too get antibiotics I'm tired cold the beast is kicking my butt I'm just sick of the pandemic and just… read more

posted about 1 year ago

What Relieves Pain?

What Relieves Pain?

I live in constant pain and have for years. I wake up in pain...everything causes pain. Exercise actually helps.
I also take a pain killer in the am so I can get out of bed.

Ive tried everything from Gabapentin to acupuncture to opiods. All help some...but not that much.

A MySpondylitisTeam Member said:

Unfortunately I can not take any NSAIDS due to stomach & GI bleeds requiring 4 separate surgeries. It's really rotten because NSAIDS treat inflammation best. On nights when it's just intolerable… read more

posted about 1 month ago

Tingling And Numbness In Arm - Anyone Else?

Tingling And Numbness In Arm - Anyone Else?

I started having some numbness and tingling in my right shoulder, down the arm and into the hand. This is 2nd time in a week it has happened. I can still move it, still feel like normal, no pain, no other symptoms (other than panic/anxiety thinking it might be a stroke) I mentioned it to my rheumatologist when i saw her last week and she said its probably a nerve as the other time happened when i was driving for a couple of hours..

Has something like this happened to anyone else?

A MySpondylitisTeam Member said:

Thank you, Amy! My primary has recently prescribed the same, but I can only take it at night due to dizziness 🥴. I am a big fan of yoga too, especially any hip flexor poses, unfortunately, I cannot go… read more

posted 21 days ago
Can a Rheumatologist Help With Your Back Pain? Read more >

Anyone Have A Pain Pump?

Anyone Have A Pain Pump?

I need to ask some questions about the pain pump. I’m hoping to get one this month

A MySpondylitisTeam Member said:

Hi! I'm getting one this coming Tues, the 11th. I just came on to ask if anyone has one and ask some questions. I'm as nervous as a cat on a hot tin roof! My anxiety has been through the roof today… read more

posted 4 months ago

Balance Problems And Sore Ribs

Balance Problems And Sore Ribs

I'm new on here and I haven't seen anything about balance problems. Is this just me or does anyone else have these problems. I just can't always walk a straight line. When I walk down the hallway in my house I sometimes almost bounce from wall to the opposite wall
I also get sore ribs. I ended up spending a night in the hospital because I couldn't draw in a full breath because I hurt in the middle of my chest (Sternum?) and around my left side ribs and to my back. I have some compression… read more

A MySpondylitisTeam Member said:

I too have balance issues. Use a walker or cane, it is better than having broken bones due to falling because of losing balance. I also have rib/chest pain. Sometimes it is hard to breathe, sometimes… read more

posted 27 days ago

Does Anyone Else Have Spinal Stenosis And Resulting Leg Numbness/pain/weakness When Walking?

Does Anyone Else Have Spinal Stenosis And Resulting Leg Numbness/pain/weakness When Walking?

Does anyone else have spinal stenosis and resulting leg numbness/pain/weakness when walking? I’ve had stenosis affecting my walking to some degree since I was 26. I keep hearing I’m “too young,” so I’m just curious if others on here experience it as well.

A MySpondylitisTeam Member said:

Last Jan. I had a 6 hour spinal surgery. No vaccines, ever again, smart lady!!

posted 8 months ago

Hi, Is It Possible To Been A Carrier Of The Spondylitis Gene, Have Some Symptoms But No Back Problems That Are Associated With This Disease?

Hi, Is It Possible To Been A Carrier Of The Spondylitis Gene, Have Some Symptoms But No Back Problems That Are Associated With This Disease?

Cont../..

I carry the gene, have had uvitus, liver disease which has been diagnosed as fatty live & recently believe i have Costochindritis which are all linked to spondylitis but specialist say I don't have it because my vertebra is not fused but I do get back problems.

My Dad had this condition, sadly 😥.

Look forward to a reply.

A MySpondylitisTeam Member said:

Found out about 3 months ago I have the gene. Have been having some problems for years (unfortunately mine seems to have the gi issues with it) been having back/hip pain for the past several years… read more

posted about 2 months ago

Does Anyone Have Difficulties Conversing?

Does Anyone Have Difficulties Conversing?

Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.

A MySpondylitisTeam Member said:

Yes! That's EXACTLY how I am! I feel like an idiot sometimes and like my colleagues wonder what is happening to me. It's beyond frustrating!

posted 25 days ago

C3-C6 Laminectomy With Nerve Root Decompression, Has Anyone Had This And Had Relief?

C3-C6 Laminectomy With Nerve Root Decompression, Has Anyone Had This And Had Relief?

I am scheduled to have a C3-C6 laminectomy with nerve root compression next week and I'm a bit anxious. Has anyone had this and did it relieve your neck/shoulder pain? I had an epidural two months ago and it helped some but still losing function of my right arm due to pain. Any feedback is appreciated!

A MySpondylitisTeam Member said:

I had c5 fusion not long ago went through the front of my neck , pain was tolerable with drugs the only weird thing that happened to me was I got frozen shoulder in my right bc of the position they… read more

posted 4 months ago