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I've Just Spent Approx. 34 Hours Sleeping! Anyone Else Have This Type Issue?

A MySpondylitisTeam Member asked a question 💭
Odessa, TX
A MySpondylitisTeam Member

Many people with spondylitis experience significant fatigue and sleep disturbances. Some members of MySpondylitisTeam have shared similar experiences, such as needing multiple naps throughout the day… read more

What Are You Doing To Control Or Reverse Kidney Disease?

A MySpondylitisTeam Member asked a question 💭
Mississippi State, MS

Some autoimmune diseases attack the kidneys. AS and medications used to treat it can be a cause. This thread is specific to the kidney. Various autoimmune diseases that attack the spine also attack other organs within the body. Some specific medicines, specific diets, specific exercises can reverse or slow this risk. What has healed yours. Please answer in a way that reflects personal experience and do not advise or attack other people as not all things work for everyone as their bodily… read more

A MySpondylitisTeam Member

@A MySpondylitisTeam Member I haven't cooked with salt since 1986, I lost my right kidney due to continual infections and lack of treatment from the military.

Does Anyone Else Have Spinal Stenosis And Resulting Leg Numbness/pain/weakness When Walking?

A MySpondylitisTeam Member asked a question 💭
West Palm Beach, FL

Does anyone else have spinal stenosis and resulting leg numbness/pain/weakness when walking? I’ve had stenosis affecting my walking to some degree since I was 26. I keep hearing I’m “too young,” so I’m just curious if others on here experience it as well.

A MySpondylitisTeam Member

My grandma had a lot of issues with stenosis. Water aerobics and walking, instead of walking on pavement or hard surfaces, helps

Muscle Relaxers? Names Of Please?

A MySpondylitisTeam Member asked a question 💭
Stockport, UK

I often see that people take these meds but don't know what the names of them are so I can ask the doctors if they would help me sleep without so much pain. If you take them please can you give me the name of the medication you take and if it helps. Thank you. X

A MySpondylitisTeam Member

Baclofin

You Ever Just Feel Like Your Body Is Lacking And Craving Something?

A MySpondylitisTeam Member asked a question 💭
Parkersburg, WV

Last night I just felt like my body was lacking something, like I needed some fruit.Went to store and loaded up on fruit.Had some and instantly I felt better🤔

A MySpondylitisTeam Member

I know when i start craving sour things my body needs folic acid. So yes our body tells us what we need if we could just learn what it all means

What Are Some Of The Ways We Can Put The Pain In The Back Of Our Heads?

A MySpondylitisTeam Member asked a question 💭
Blountstown, FL
A MySpondylitisTeam Member

Music is my savior!🎶

This Question Is Just To Cheer Us While We Struggle. Maybe We Get Inspiration For Others. What Are Some Of Your Most Wonderful Memories?

A MySpondylitisTeam Member asked a question 💭
Mississippi State, MS
A MySpondylitisTeam Member

Oh yes! Thx for the LOL's!! Love you all my friends!!!😊

Can Spondylitis, Cause Caner?

A MySpondylitisTeam Member asked a question 💭
6 reler lane,SOMERSET NJ

My pain is so bad, I hurt shoulders midback
Lower back,,some time the
Pain moves, right or left 🥵
Help

I Was Diagnosed With Ankylosing Spondylitis About 20 Years Ago, My Question Is, How Do People Manage MRI/CT Scans ? I'm Struggling..

A MySpondylitisTeam Member asked a question 💭
Blackburn, UK

My spine is now curved and I have had a frame built the bathroom of my spine due to infection, I've also recently had spinal surgery for spinal stenosis and lost the use of my legs, so scans and some x-rays are near impossible and really painful so any advice or tips would be really appreciated.

A MySpondylitisTeam Member

really sorry to hear about the pain you are having with this. while I can't get MRIs anymore due to an implanted neurostimulator, lying down at all is very painful for me, let alone for a long… read more

What Pain Killers Do Others Take. I'm On Gabapentin And Some Days It Don't Touch It.

A MySpondylitisTeam Member asked a question 💭
Driffield, UK
A MySpondylitisTeam Member

I have a pain patch and take tramadol when there’s breakthrough. I didn’t want to take stronger meds, but the relief is unbelievable.