Spondylitis

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7 medium

Taboo: Endgame expectations

Taboo: Endgame expectations

As this disease progresses (deteriorated you) and family & friends don't understand you and therefore dont help you or help you less and less, and doctors decrease or stop treating you due to political cost effectiveness mandates...
Where do you see yourself? How do you see yourself physically? How do you see yourself coping? Are these your final days? What kinds of choices will you make?

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A MySpondylitisTeam Member said:

I find if my body PH is acidic, that is less than 6.9 , I will feel more pain.
So I drink aloe Vera juice and eat lots of vegetables and drink… read more

posted about 2 hours ago
5 medium

Do we need a sponsorship program?

Do we need a sponsorship program?

I am an overly emotional person, just the way I’m built. I often wonder that I’m not doing enough to support everyone Is there a need for a sponsorship program? It’s just a thought. To help building a ramp, giving a physical hug or what is needed to someone I need. Does this support already exist and I don’t know of it. Most of the time here we just need to vent or get suggestions to our problems. I see some that I think need more contact and it bothers me, as I should be doing… read more

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A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member
Some random thoughts and ideas for you on finding resources and creating a support group...
I Googled "State of Virginia,… read more

posted about 20 hours ago
1 medium

Does anyone on here have Arachnoiditis?

Does anyone on here have Arachnoiditis?

Does anyone on here have Arachnoiditis, I was diagnosed with it 16 years ago, and I am in torment. I am now on 647mcg. Intrathecal Fentanyl pump therapy, 2 oxycontin, 2 cymbalta, 2 lyrica, and 2 diclofenac, and it only shaves the edge off the pain at best.

Does anyone have any suggestions that might help?

I am trying acupuncture next as I hear it sometimes helps.

Thanks I advance,
Rick Lillard

8 mini
A MySpondylitisTeam Member said:

Rick, it sounds like your body has built up a resistance to the meds. I do acupuncture every week and it helps a lot. I also bought the cups you put on… read more

posted about 10 hours ago
1 medium

Could the nausea be caused by the condition of my spine effecting the nerves to my stomach?

Could the nausea be caused by the condition of my spine effecting the nerves to my stomach?

I usually don't pay much attention to physical discomfort bit yesterday it got so bad I took myself to the ER. I was having severely nausea and loan up the sides of my back. Blood tests and a cat scan showed nothing wrong, in fact a couple of nurses commented on how they rarely see a healthier specemin of my age.

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A MySpondylitisTeam Member said:

Do you not get pills to help with tummy upsets from taking pills ?

posted 13 days ago
9 medium

What test or method is needed for ankylosing spondylitis for disability to see if criteria is met for blue book listing 14.09?

What test or method is needed for ankylosing spondylitis for disability to see if criteria is met for blue book listing 14.09?

I am really having difficulty getting what should be a simple answer to a simple question. If anyone knows the answer please do share. I need a test to measure the Ankylosis (fixation) of the dorsolumbar or cervical spine as shown by appropriate medically acceptable imaging and measured on physical examination at 45 or more of flexion from the vertical position (zero degrees); I have… read more

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A MySpondylitisTeam Member said:

It took me over 3 years. Don't give up......

posted 28 days ago
5 medium

Does Anyone use TEETER HANGUP to reverse spinal compression.?

Does Anyone use TEETER HANGUP to reverse spinal compression.?

I have been using TeeterHangup about 12 years now and I'm pretty sure it's the only thing that has saved me from being crippled. The inversion therapy is like a blessing. I don't mind hanging upside down for a few minutes a day or a week. It's less expensive than going to get stretched on a table. Does inversion help anyone else.?

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A MySpondylitisTeam Member said:

You need to decompress
If discs are degenerating
I lay down every 4-5 hours at least 15 minutes

posted 2 months ago
2 medium

What role does orgasm play in stress reduction and/or pain relief?

What role does orgasm play in stress reduction and/or pain relief?

I've not seen this question asked. I recognize the challenges of ongoing pain, discomfort and backing away from physical contact and intimacy. What I've heard is most people don't want to be bothered, it's another task and/or imposition. What I know is it's difficult to nurture relationships when you're feeling miserable and you want to be left alone.
Physiologically/psychologically speaking, there is a pleasure zone that can lift us out of… read more

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A MySpondylitisTeam Member said:

Good deal Joshua MDean !!

posted 6 months ago
9 medium

Weary about biologics

Weary about biologics

Hi there,

40 year old male diagnosed this year but likely have had it for 20 years.

Xrays show fusion in T3 (among other areas). I have pain daily and stiffness. Doctors categorize as severe. Inflammation markers are high.

Treatments tried:

1- multiple NSAIDS which I know are not sustainable and also didn’t sit well with stomach
2- regular gym, massage, stretching - this helps
3- no starch diet for 3 months (not sure yet if this is helping)

Doctors have all recommended I go straight to… read more

9 mini
A MySpondylitisTeam Member said:

Www.DIRECTVITAMIN .co.uk
Turmeric &
Black pepper
500mg 5mg biopererine

posted 6 months ago
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