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My rheumatologist doesnāt want to start me in biologics, and I canāt take Ibuprofen or Tylenol, and prednisone didnāt work, my CRP & ESR have been elevated for nearly 2 years. Iām a mess of several commodities.
Can you take naproxen sodium? Aleeve?
I was diagnosed with AS approximately 2 years ago. Have been on Humira injections twice a month , 40 Mg. The first year year it worked great but now just doesnāt help as much. Does anyone else experience reduced benefits?
So very sorry for you.m
I stop the nsaid for one day to compare the pain with and without the medication. I realised i still really need the nsaid. I'm gonna try again after the third dose but my doctor told me it should improve in two weeks. I think he was a little too much optomistic but i'm still hoping. How about you? How long it took? Because my stomach is starting to need a vacation. Thanks
Hi, I started Cosentryx mid November and have been told it could take three months to work. I am still taking Naproxen Sodium twice daily to help inflammation and pain. It takes the edge off forā¦ read more
Yes, many people have stomach issues if they have autoimmune diseases and pain. There are a lot of medicationās that we take that can affect our stomach by either creating too much acid or irritatingā¦ read more
Please how are you coping with it. Those that aren't getting enough medicine to control pain, what do you do?Let's talk š¦
I've been on Narco 7.5 mg for 5 months 3 x a day. That's all and finally am getting 10 mg a day. I won't know until this Sunday if it works. I can only fill one prescription a month period. It doesn't matter if there's an extra day in the month and I'm short
The pain gets so bad I want to croak šø. Now we aren't going to do thanksgiving or Christmas because it's been so hardā¦ read more
Thanks for your replies š. I've been on my own journey with this since I last wrote
I was on hydrocodone and it helped for a few months. Then didn't so was put on Percocet also 3X a day. For 2 monthsā¦ read more
I agree about the exercise dunno about the diet tho haha
Hi everyone,
I was diagnosed with Ankylosing Spondylitis last year and it really destroyed my world. I was 21 and training to be a professional dancer so it felt like everything I'd been working towards was gone.
The past year I've worked really hard to get my illness under control with medication and lifestyle changes. I'm back dancing and training to achieve my dream. The plan was to try a biologic injection but recent imaging has shown that I don't have active inflammation anymore and myā¦ read more
Hi Yousef,
Many thanks
I just try to eat as balanced a diet as possible, I don't follow any particular regimes. I swim occasionally but I go to the gym and dance regularly.
I take sulfasalazineā¦ read more
I was diagnosed with 'non radiographic' AS (although it's questionable about the NR b/c my doctor saw inflammation on the MRI, brought it to the attention of the radiologist who then agreed) and started with taking Piroxicam at night. Initially and for the first time in my life I woke up in the morning without pain. I then was prescribed Cimzea (the medication for NR AS). It's been close to a year and recently, I started having the same pain in the morning where it's difficult to straighten upā¦ read more
Anything is possible. I've been on medication that I questioned about whether it was wearing off. I quit taking the medication for one week, started back on it and it worked great
Don't do thisā¦ read more
Thank you everyone for taking the time to share your experiences! God bless you all!
Hi all I have AS. I suffer with my lower back, neck & shoulders. Started getting pain, swelling & stiffness in knuckles,knees & feet. I'm on celecoxib & amitriptylene. Wondered what others have for their pain. I've had naproxin in the past but caused gastritis. Just want to see my Rheumatologist now as got new pains. Thanks in advance
I'm in a biologic, so is my dad. That helps us. He is on humira, I'm on infliximab