Spondylitis

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2 medium

Exercise: Yes or No?

Exercise: Yes or No?

Do you find exercise helps with your illness'? I have PsA, Fibromyalgia and Severe Asthma- just to name a few. My husband thinks I need to start exercising, but I disagree. Walking takes a toll on me. Moving around hurts, even more. I don't think he understands the depth of my conditions. When a doctor (pain management) says they are sorry and there is nothing they can do for you, you would think....it's bad, really bad. I try to walk at least 500 steps daily. Some days are better than others.… read more

4 mini
A MySpondylitisTeam Member said:

Yes. You have to watch what you eat too
Sugar and too much carb and breads makes me acidic
I wouldn’t drink for awhile and then drink k then my BP… read more

posted 5 days ago
4 medium

Does anybody else have.problems with the tailbone or coccyx?

Does anybody else have.problems with the tailbone or coccyx?

I cannot sit for any length of time without struggling to get up due to it being so sore.
Ive been told to do pelvic floor exercises but this also really hurts.my coccyx.

4 mini
A MySpondylitisTeam Member said:

With great difficulty, i am on Humira which im sure relieves some of it. I have to keep sitting to a minimum.

posted 5 months ago
9 medium

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

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A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member Lowman
Yeah I can't see why anyone would take some of these meds if they didn't have any pain, the side effects for a start… read more

posted 26 days ago
2 medium

How many people think their spondelosisthesis ia also affecting their hips.

How many people think their spondelosisthesis ia also affecting their hips.

I have spondelosisthesis a grade 1,the other complication I have is related to my left hip. One consultant went from diagnosing spondelosisthesis to saying I need a new hip, which will make your back worst but I can't treat that? I just knew in my gutt this was incorrect. I had a second opinion, from another consultant. My symptoms are apart from the lower back pain, are that I can hardly walk due to the pain and restriction in my left… read more

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A MySpondylitisTeam Member said:

I have bilateral SI joint pain as well. Constant aches.

posted about 1 month ago
9 medium

Weary about biologics

Weary about biologics

Hi there,

40 year old male diagnosed this year but likely have had it for 20 years.

Xrays show fusion in T3 (among other areas). I have pain daily and stiffness. Doctors categorize as severe. Inflammation markers are high.

Treatments tried:

1- multiple NSAIDS which I know are not sustainable and also didn’t sit well with stomach
2- regular gym, massage, stretching - this helps
3- no starch diet for 3 months (not sure yet if this is helping)

Doctors have all recommended I go straight to… read more

9 mini
A MySpondylitisTeam Member said:

Www.DIRECTVITAMIN .co.uk
Turmeric &
Black pepper
500mg 5mg biopererine

posted 3 months ago
9 medium

When is it time to try biologics?

When is it time to try biologics?

I was diagnosed with non-radiographic axSpa a few months ago. I’ve tried several NSAIDs, PT over the years, exercise, prednisone, injections etc., all of which have helped some, but I am still having pain.
The rheumatologist wants me to try 4 weeks of prednisone again, along with Tramadol, to see if that will help. When I mentioned concerns about progression, he said that I shouldn’t worry about it - but that Enbrel might be an option if I would like to try it.
I appreciate all… read more

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A MySpondylitisTeam Member said:

Prednisone should only be a temporary. Fix. I have the same diagnosis with severe pain. I have been through back injections until my adrenals were… read more

posted 5 months ago
1 medium

Is there exercise for legs as when I walk anywere by night my legs and hips are in agony

Is there exercise for legs as when I walk anywere by night my legs and hips are in agony

9 mini
A MySpondylitisTeam Member said:

Wow, that seems very expensive, I buy mine from eBay and they are about twenty pounds for a good quality one. I agree about the pain relief though. The… read more

posted about 1 year ago
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