Spondylitis

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9 medium

Has a "professional" eg, Dr. surgeon, specialist ever doubted your pain? Looked at yu like you are crazy or a drug seeker?

I started symptoms when I was 16, chiropractors and more chiropractors until my early 30's and I quit. Diagnosed at 43 :'( Two spinal fusion surgeries, 70% curve in my l 4, l 5 and because I walked around with a fractured screw for over a year after my first surgery that caused 6 discs to rupture which were caged in my second surgery along with rods, bigger now :/ pins screws etc etc etc, instead… read more

posted about 1 year ago
A MySpondylitisTeam Member said:

Sorry to read you had to go through such a scary thing before things got better. But thank Goodness it did if now your with the right doctors and right… read more

posted 2 days ago
9 medium

Weary about biologics

Hi there,

40 year old male diagnosed this year but likely have had it for 20 years.

Xrays show fusion in T3 (among other areas). I have pain daily and stiffness. Doctors categorize as severe. Inflammation markers are high.

Treatments tried:

1- multiple NSAIDS which I know are not sustainable and also didn’t sit well with stomach
2- regular gym, massage, stretching - this helps
3- no starch diet for 3 months (not sure yet if this is helping)

Doctors have all recommended I go straight to… read more

posted 19 days ago
A MySpondylitisTeam Member said:

Hi Dave, I was diagnosed finally about 5-6 years ago by a specialist with all the test positive. I've been on Humira ever since, I understand your… read more

posted 4 days ago
9 medium

When is it time to try biologics?

I was diagnosed with non-radiographic axSpa a few months ago. I’ve tried several NSAIDs, PT over the years, exercise, prednisone, injections etc., all of which have helped some, but I am still having pain.
The rheumatologist wants me to try 4 weeks of prednisone again, along with Tramadol, to see if that will help. When I mentioned concerns about progression, he said that I shouldn’t worry about it - but that Enbrel might be an option if I would like to try it.
I appreciate all… read more

edited, originally posted 2 months ago
A MySpondylitisTeam Member said:

Prednisone should only be a temporary. Fix. I have the same diagnosis with severe pain. I have been through back injections until my adrenals were… read more

posted 11 days ago
1 medium

Is there exercise for legs as when I walk anywere by night my legs and hips are in agony

posted 8 months ago
A MySpondylitisTeam Member said:

Wow, that seems very expensive, I buy mine from eBay and they are about twenty pounds for a good quality one. I agree about the pain relief though. The… read more

posted 8 months ago
4 medium

Does anybody else have.problems with the tailbone or coccyx?

I cannot sit for any length of time without struggling to get up due to it being so sore.
Ive been told to do pelvic floor exercises but this also really hurts.my coccyx.

posted 11 months ago
A MySpondylitisTeam Member said:

standing and god forbid sitting for more than 15 mins I'm in so much pain and really in need of a lot of ice packs

posted 6 months ago
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