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Tentative About Starting Humira
I was recently diagnosed with AS. I had started Celebrex 3 days before meeting my rheumatologist. The rheumatologist barely read my chart or listened to anything I was saying before telling me I need to start Humira. My inflammation markers are all down to normal ranges after Celebrex. My pain levels are drastically reduced - though I still have SI joint pain. The Dr said Humira stops the disease progression- which is why I need to start. If my inflammation is down, is the disease still… read more
Thank you so much for sharing your story
I Have Been On.celebrex For The Last 25 Years. Recently A New GP Told Me To Stop Them. I Feel I'm Ill As 1995 When I Was First Diagnosed.
How Do You Handle Pain. Most Doctors Are Afraid To Give Anything Stonger Than Tylenol.
@A MySpondylitisTeam Member. I went from stage 4 CKD after medication caused Acute Kidney Injury to perfect kidney bloodwork by stopping all medications and high oxalate foods, drinking 70 oz water a… read more
Advil
I thought advil and the generics were bad to use on my dpine surhgies, mainly the fusions areas of my surgery. Is that true , at least most cases?
Does Tylenol Help With The Pain?
I can’t take nsaids because of irritated stomach. Will Tylenol help as much as NSAID’s?
Taltz Or Cosentyx?
Diagnosed nr-axspa 2019. Tried nsaids. Barely touched pain. Rheumatologist recommends biologic next. Anyone have experience with these for nr-axspa? Pain is so ugly...
Is Ibuprofin Better Than Paracetemol For AX ?
Has Anyone Been Approved For Disability
Yes, some people have been approved for disability benefits for spondylitis. Here are a few insights from MySpondylitisTeam members:
- One member reported being among the fortunate few to receive… read more
New Doctor Disbelief Issues
Just got a new doctor that thinks I DO NOT have AS. She has sent me out for a new series of x-rays, which hurt everywhere. In the new x-rays it shows poor disc spacing, bone on bone, and cartilage deteration as was in my chart, she is still refusing to see me until September or give a change in meds to help this flare of pain. Why have these people gone into a profession to help people only NOT to believe they have uncontrollable pain, daily??? I'm so out done and annoyed that aed student said I… read more
If you're facing disbelief from a new doctor regarding your spondylitis, here are some tips based on the knowledge base:
- Approach with Empathy: Share your experiences and feelings openly. Mention… read more
Why Are The Drugs That Contribute To Inflammation Recommended To Treat It?
The article mentions that Nsaids, biologics, and other Immunosuppressive medications contribute to gut dysbiosis which in turn contributes to inflammation. Isn't recommending them to patients counter productive to alleviating the inflammation?
Yes, you mention many procedures/options my doctors have not even brought up as options. In the last 4 years (maybe) I seem to have gone from 5ft9 inches to 5ft6 inches!! My spine is a mess. I've… read more
