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I have no problem taking meds that help me but the prices are ridiculously expensive like 3,000 a month so I said no, cannot afford and even though the meds do help with slowing down the progressing I have to say no. Does anyone taking these meds.
I also have fibromyalgia and barretts oesophagus therefore cant take ibrufen. Is there anything else that would help.i have no quality of life.
Hi @A MySpondylitisTeam Member, I wonder if you have found a solution in these three months? There is IV therapy, and injections available for immune related diseases. I would like to hear what you… read more
I thought advil and the generics were bad to use on my dpine surhgies, mainly the fusions areas of my surgery. Is that true , at least most cases?
I even told my doctor, primary, that I trust him with my health, he in turn needs to trust me to be a compliant patient. Remember work for you. As your insurance pays them and sometimes you have… read more
I live in constant pain and have for years. I wake up in pain...everything causes pain. Exercise actually helps.
I also take a pain killer in the am so I can get out of bed.
Ive tried everything from Gabapentin to acupuncture to opiods. All help some...but not that much.
Yep pot dose help but the state where I live it’s not legal wish it was I get some sometimes but don’t want to go to jail for it
Can’t afford the fines , bonds, lawyers and be stuck on a hard metal… read more
My rhuemy knows of the spinal stenosis, degenerative disc disease, bony islands, RA but not AS. I'm in a flare right now...the pain was just in my back but it has wrapped around my rib cage. When I breathe in deeply my spine cracks, should I be concerned about that? I'm using heat and ice as well as small pieces of oxy and Advil.
When I started PT, because my si on my right side was hypermobile, they taught me to strengthen the muscles around the joint in order to lessen the issue. I would think the same advice would apply to… read more
@A MySpondylitisTeam Member. Hey there Karen! I didn't realize you are right down the road in PCola!😊. You're only 2 yrs older than me. It affects my whole body, plantar fascia to orbital socket(eye)… read more
Thank you
Doctors giving conflicting info and one GI extreme to the next constant pain and energy are getting rough into week 3 like this. Trying to stay strong. Thanks for any support or tips!
Fasting helps me the most. Kills harmful gut bugs and yeast deader than a hammer. I starve em out.
Try KU spine center
Anyone have success with minimally invasive surgery on their spine
My disease is progressing and I can not tolerate most narcotic pain medications. Really don't want to take medication that make feel out of it I take flexeril at night with extra strength Tylenol and one Advil. I wake up 4 to 6 hours so stiff and in pain I can't sleep. Tired of the fatigue and pain. Tried physical therapy, stretching, dry needling, pool therapy, epidurals and oral Prednisone. Looking for relief. My husband's… read more
Did Duloxetine help your pain? Just wondering. I'm on it and I feel like it helps more than any other med I've been on. I still struggle with pain every day though.
