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Members shared a range of experiences with Cosentyx for ankylosing spondylitis (AS), with some reporting meaningful relief from joint pain,... Read more
Cosentyx has been good for me. I tried a few other biologics that did nothing. Within a week my eyes stopped being red and by week 2 my joints were starting to feel better. I’haven’t reached being pain free but I’m so very much better.
I haven’t noticed any side effects. And it has allowed me to get off several other medications. The only downside was that it has not been tested with my asthma medication. Therefore I had to find a different way to manage my asthma.
Good luck!
@A MySpondylitisTeam Member, sorry it didn't work for you. I've read a few positive (some very positive) comments about cosentyx being efficient at relieving pain and stiffness. The human body is complex and each individual lives the disease in a different way. What appears is that a treatment can work for some and not for others.
@A MySpondylitisTeam Member, here is the website for gentle pilates: https://www.rachellawrencepilates.com/
and this os the one that helps me: 30 Minute Mat Pilates for Arthritis | Gentle Mobility and Flexibility to Soothe the Body. I hope this will help you. When is your surgery?
@A MySpondylitisTeam Member, thanks. I had narrowing of 3 intervertebral spaces and 2 were compressing the spinal cord. So I didn't have much choice, I had 2 replacements and 1 fusion. No I'm not in a program for pain relief but I'm going to send you the website of the gentle pilates I was doing at home before surgery. The instructor is British and nationally recognized. It definitely has helped me. Now I've to wait before being able to start again. I'm supposed to start PT soon. To answer your question, I started again taking aleve and I've been taking tramadol for a while but you won't be able to take aleve. Drew, what you asked me would be a great question to ask in the Q&A?
@Corrine2; Glad that your surgery went well, sorry that you are in so much pain! Remember. the thing about AS, is that any surgery you have, you will feel more and your body will react, with inflammation because of the AS regardless of where the surgery is on your body. It makes me think twice before having any other surgery unless it is to save my life. Are you in a program to relieve pain ( ie have a series of go to moves or methods to reduce pain when you need it?)?. I hope you do as that may be the one thing that helps keep you sane while you recover from your surgery.
The reason I mention that is I have AS, but in a week I am going to have cardiac catheterization done with possibility of putting in a stent into my heart. If they find too
much blockage, they may have to do a bypass. How I do under those circumstances is really important for me- it will tell me if I am doing the right things to minimize inflammation etc, to help in my recovery after the procedure.
Corrine, I hope the result of your surgery was worth the effort, that your pain will grow less each day, and that you will be able to
live life more fully. To your better health- Drew
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