@Corrine2 I increased my D3 + K2 and it does give me more energy. Usually when I'm flaring up, that's when I'm really fatigued. I also eliminated gluten and reduced sugar. Every bit helps to keep inflammation down and help with the pain. Rest when you can. Be kind to yourself instead of pushing through all the time. It's very frustrating to feel tired all the time. It's something we have to find ways to adapt to our situation. I've also gotten used to the Either/Or when it comes to planning my day. Don't overdo it. Choose what the priority is and be happy with what you were able to do. We can't be all things to everyone. I hope this helps Corrine.

I bought a wireless type of pro tens unit. It’s called ReliveX. My pain started seriously decreasing in 2 days. Herniated bulging discs. Sciatica. Numbness in feet. Decreased. This machine has a deeper pulsing against the muscles that wrap around your spinal column. It cost $109. And it was all over Facebook.

@A MySpondylitisTeam Member
Hi Darlene, it's nice to hear from you. As I've different conditions, I'm dealing with a lot right now. It's strange because I felt I was feeling better lately but I've been extremely tired these last few days. I'm like you, I'm trying to cut some of my medications. I wanted to ask you if you feel the same as we often have different symptoms. I've AS in my SI joints and what bothers me the most is my lower back pain and stiffness. The stiffness makes it very difficult to keep a good posture. I'm very aware of keeping a good posture as I do gentle pilates. Could you find a way for this specific issue? Have a lovely day!

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Corinne2. My machine is over twenty years old, no longer manufactured. Similar machines are sold, for example, on Amazon. I recommend trying out a suitable machine in fitness centers or rehabilitation centers. The method should be approved by a doctor. It may be in contra-indication with your diseases! -------------------- Corinne2. Můj stroj je přes dvacet roků starý, už se nevyrábí. Podobné stroje se prodávají třeba na Amazonu. Vhodný stroj doporučuji vyzkoušet ve fitnes centrech, nebo na rehabilitačních centrech. Metodu by měl schválit lékař. Může být v kontraindikaci s vašimi nemoci!

@A MySpondylitisTeam Member: I haven’t been reliably treated for AS. I was given medicines to treat me by those Drs that are contraindicated for me- I got worse than better. The rheumatologist I saw didn’t offer biologics and at this point until I know more, I am
reluctant to take. My Primary care Dr tries to help but he can’t get anywhere. I am seeking three things-1) functional health care Dr 2. Patient advocate who can help me with getting into appointments and equipment I need. A wheelchair was prescribed for me several months ago- still have heard nothing about approval
or getting it! Last, both my wife and I are evaluating going off medicare advantage plans and going with straight medicare and getting a supplement plan do I could be seen by Mayo Clinic. I have a pain pump but I am in even more pain than the pump can handle. As part of my pain remedy I had been taking NSAID’s like Acetaminophen and Ibuprofen where some on this site suggest that one should get off all NSAID’s- combine that now with Gastroenterologist who days I should have no NSAID’s, No alcohol, no coffee, no caffeine amongst a bunch of other “No’s”. I don’t take enough of any of those things for it to be a problem. Even tho I told Gastro that I have AS, they are treating me as tho I am a normal run of the mill Gastro patient- which doesn’t make sense. Nothing makes sense anymore or so it seems! So its one day at a time!- Drew

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