Powered By
Diagnosed with AS, also degenerative spine, disk disease. It is difficult to tell sometimes what is the damage done and what is the chronic pain from AS. I am not sure if anyone has had help or problems with cervical ablations. I am interested in others ourcomes. Thank you 😇
Answer Summary
Members shared personal outcomes after spinal ablations, with several describing increased pain, frustration, and feeling dismissed by medical... Read more
@A MySpondylitisTeam Member. Im so sorry to think of you going through all that Tam. I agree, any other aggravation to your body currently, such as an ablation, I can imagine must surely do nothing but cause more agony. Our bodies do get overwhelmed with all the invasive tests, as does our psyche. By chance, have you ever done a gut microbiome mapping test? It's a 4 day poop collection that analyzes the balance of microbiota, covers parasites and old viral pathogens lurking in there. There's also a blood test for galectin-3. In all likelihood you have high levels of that. Modified citrus pectin has been found, according to Gordon Medical Associates and other FM drs, to bind to galectin 3 on the molecular level and pull it from your body to be excreted naturally. I would also try to contact Dr Micah Yu, Rheumatologist who sees people virtually, for the correct way to test for Lyme spirochetes (31 and 32 or something like that, there's an interview on YouTube Tube with Dr Yu and (ret) Rheumi Dr Alfred Miller about how the body needs a prompt before the test to break down the protective membrane of the Lyme hiding in the body. Then the antibody test reveals the existence of the Lyme if it's indeed within. This is the only way to reveal (or not) for confirmation. Lyme is common in MS. One other test that might point to your cause(s) is for mold mycotoxins. Any level of stachybotrys or ochratoxin can cause your symptoms. All these tests are blood draws, urine, or stool, nothing invasive. If you can find your causes you can begin to get on a diet/supplement/medication protocol to get the bad stuff slowly killing you out. In the meantime, try to get a minimum of 90 grams protein and 20 different plant based (herbs/spices count) foods with fermented veggies in there too, into your body, half your body weight in reverse osmosis filtered water. Add a bit of lemon and pure Himalayan pinch of salt to the H20. Zero processed sugar ever. Get a headscart on re-building new cells while at the same time cleaning out the diseased cells. I would try to get an online consult with Dr Terry Wahls as well as Dr Micah Yu if i were in your position. A lot needs to be looked into and resolved. The sooner you can get good guidance on healing on the cellular level, the sooner you can get your life back. Its not fast, but when I was at your point, I thought "what else am I going to do?" Lasting healing doesn't happen quickly, we will be at it forever, but you can definitely get a whole lot better.
@A MySpondylitisTeam Member,@LucyFulker @A MySpondylitisTeam Member, @A MySpondylitisTeam Member.
For this and every other invasive procedures, it might help to get on a very low dose of prednisone. This is counter to typical recommendations around such procedures not only due to the extra bleeding risk, but also because some level of inflammation (and resulting pain) is essential to normal healing processes. However, I learned this from a Lupus patient acquaintance. Ongoing chronic inflammation, not just felt but confirmed by lab tests in ANA, C-RP, ESR, etc, in excess prolongs and even prevents normal healing function as experienced by non autoimmune or full remission (non elevated inflammatory markers in the blood). Therefore, if taking low dose (5-10mg/day) prednisone prior to and during the procedure the dr/surgeons must be prepared to deal with excess bleeding. Yet, it still might be worth the risk/hassle for pain management from extreme inflammation, especially because presumably there is more in the area that is inflamed than just the one nerve being ablated. Furthermore, it is extremely important that the patient take extra care in moving around during the healing process because not only the area treated, but the rest of the body as well will be at significantly higher risk for more injuries, including tendon tears and ulcers, amongst many others. Prednisone is responsible for that. This consideration is one that needs bearing in mind when deciding if the high risk is worth the maybe, low guarantee, of reward. It is so hard to know what to do in such a situation. I was posed with this option on my wonky neck (complete convex at the time) back in 2012, 6 months maybe (50/50) some relief, risk of paralysis, no thanks. Maybe if the relief were proposed to be longer, but for me the risk was not worth the reward. Still isnt.
The BMAC stem cell treatment I had over 2 years ago took a full year to see MRI improvement. Still not perfect, far from it, straight instead of convex. Fewer osteophytes, less stenosis, i dont have to use my hands to pick my head up from chin to shoulder position. I dont know how long the improvement will last. I will likely try it again before doing any other procedure to my neck. TriCare and VA pays 100% on a by case aporoval, for anyone out there military. 😌🙏
Oh- and when I called the office, the nurse said just go to the er. Like they don’t want to deal with me. I’m so upset and depressed. I feel like such a burden. I can’t enjoy my life like I want to.
It’s awful! The same thing happened to me. And the dr tried it again a month later. It still didn’t take and I am in so much pain!
@A MySpondylitisTeam Member that's what my pain and Rehabilitation doctor wants me to do but I think I'm going to stick to getting my pressure point injections around my spine instead since I get about the same time frame of relief that the ablation says it gives and of patient reviews like yours. So sorry your dealing with that much pain, I know how bad it can be.
Join
Your Privacy Choices
