I have ax-spa and I'm now on my 2nd round of biologicals. My skin is flaring leaving giraffe print like scars all over my body but told it's not psoriasis. I've been getting pain in my skull also . Is there anyone on here that uses CBD oil for pain over medicine
.I feel I'm held hostage over my medication at times by my rheumatology team and it made 1 biological fail I'm now on my last biological before a spinal fusion and that scares me I'm 33 and have twin 5yr old boys 1 who has autism . So… read more
@ChuckRosenverger. Wow Chuck, that sucks to have one there. I am in no way a fan of any surgery, but that might be one id consider. Have you looked into it? I have occasionally had temporary vocal cord paralysis during flares, and i have a constant "organic essential tremor of the tongue, throat and larynx" according to an EENT dr. That's bad enough. Does your tumor cause a lot of pain? How long have you had it? Yours in better health P 😌🙏
Yea,,I do but mine is from a vegus nerve shwannoma
@A MySpondylitisTeam Member. Do you have a drugstore nearby, like CVS or Walgreens? Or can you order online? Im not sure about prices, but they have mouthguards available. A dentist recommended one to me when i had this pain, but i dont grind my teeth and when i tried a mouthguard i began grinding on that thing in my mouth. 🤦🙄Anyway, maybe that will spare your other teeth. Im sure it's less financial strain to get a mouthguard than to have dental surgery, depending on out of pocket copays. Just a suggestion. Yours in better health, P 😌🙏
I had a jaw bone infection that wouldn't clear up with abs and a hole down my gum to the bone made by the dentist..I had the molar removed and infection cleared up! This disease is terrible..clinching teeth because of pain makes you have issues is what my original Dr said..I try my best not to but find myself doing it.
Did you get a biopsy on those spots from a Dermatologist? Sounds like guttate type psoriasis. Only a biopsy can confirm that. I have/had that type first in 2004 then again in 2020-2021/2. Now my skin is 100% clear. Cleared up IBS/D Chron's too, and CKD, and NAFLD and Neutropenia. Psoriatic Spondylitis is trickier, but i think im almost on top of that too, just patching up the damages done. Way easier said than done though with that. I believe i can get there, been at it for a long time and almost there. To get better i quit all the prescription meds. 5 biologics sxperiments are what ruined my kidneys, liver, and blood. We're not meant for lab generated DNA involving Chinese Hamster Ovaries. And dont get me started on experimental caccines either🤦. Whole nutrition and daily physical therapy is the only way. Determine what is causing your body to react like it's being poisoned and get rid of that. Figure out what's causing stress in your life and get rid of that too. Easier said than done. You may need help from different types of professionals. Or you can go online and figure it all out for yourself like i have been the past 5 years. It's a lot of work, but the alternative is even harder. 🙏