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Radio Frequency Ablation And Nerve Block? Opinions?

A MySpondylitisTeam Member asked a question 💭
Belmar, NJ
December 16, 2024
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A MySpondylitisTeam Member

Many that I have talked with about ablation told me basically that you are likely to get temporary relief from the pain. However, nerves grow back and from what I understand the pain returns with a vengeance. I chose not to get it and I'm now glad that I did.

January 14
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Hello my fellow MG and Happy New Year to you! 🪷 Maybe your Rheumi said that because he/she knows that ablations don't affect cytokine production or have anything to do with whole body healing. However, if they help you have less pain overall for longer than a few hours, even in just the one area the deadened nerve affects, who cares. That relief alone is a good catalyst towards overall improvement. I hope you'll be able to do more of what you enjoy this year. ☺️🙏🌺

January 4
A MySpondylitisTeam Member

@A MySpondylitisTeam Member, I hope your cervical procedure helps your pain. I have found pain relief with all my procedures and I have had a lot. Some worked more than others, some lasted longer than others. But, they have helped at least for me.
I can’t believe the Rheu took you off your biologic without checking all your blood work first. Or at the very least reviewing all your medical records. Seems very unprofessional to me. The doctor is referring to the HLA -B27 gene found in most People with AS. However, not everyone with the gene develop AS and you can have AS and not have the gene. The diagnosis of AS is not based on the gene alone. It’s based on a combination of symptoms And markers of inflammation.
I certainly hope he helps you at your March appt. Also help your shot helps you as well.

January 31
A MySpondylitisTeam Member

I had a superior cluneal nerve block and was afraid however I can get out of bed in the morning and stand up straight for the first time in over 20 years. It’s been a month now and I’m still feeling better yet I do know another procedure is to follow.
I also tried a new rheumatologist because going back and forth to NY HSS after 4 years was getting difficult and expensive. He was referred to me by a friend who is in remission from RA. I waited 6 months to see him, sent all of my records of 4 years from HSS and he never looked at them. He seemed to scoff at my AS diagnosis and kept asking if I had the gene. He took me off my latest biologic and sent me for bloodwork. It has been 3 weeks since my last Amjavet injection and I was ok until this morning, everything hurts. I don’t know what to do now it if things get worse I will call him, I don’t have an appointment until March.
Today I am sitting in pain management office waiting for numbing injection in my cervical spine.
Thank you all for the information and support. ♥️❤️‍🩹

January 28
A MySpondylitisTeam Member

Hi Moche, what did you decide about having Ablation ? I had cervical ablation and lumbar ablations in the fall from my pain management doctor. I have had many in the past and they have always helped my pain.
I went to my Rheumatologist recently informing him of my Ablations. His response was Ablations will not help pain associated with AS. I regretfully didnot ask him why nor did he explain. My pain med doc knows of my AS condition but it wasn’t discussed at the time of procedure. Good luck to you.

January 3

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