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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MySpondylitisTeam Member asked a question 💭

Does anybody have Thoracic Outlet Syndrome? I have a scoliosis in that area and am wondering if the AS, on top of scoliosis, could contribute to it?

I have been in agony since Christmas. Pain meds, physical therapy, EMG and ESI.

Finally, saw the doctor, and am finally getting checked for TOS.
Anybidy else deal with this?

September 8, 2024
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A MySpondylitisTeam Member

Hi Mamee, I also have a scoliosis in the thoracic section.
I am having trouble getting the Small - (spinal Muscular Atrophy) diagnosed.
Many doctors have not heard of it and don t know how to test for it.
I have the "bear hug" and sometimes it is like there is a piece of metal across the thoracic section - pressing on my back.
Very bad pain.
I have not heard of TOS. I will research it.
In some MRIs of my back, stenosis is described, neck, also.
Will send what I find out. Hope you will send your results, also. (Email address can only be seen by the question and answer creators)

September 8, 2024
A MySpondylitisTeam Member

Well my doctor said nothing about that. She didn't think that was the problem with that I was happening . Sorry. If I hear anything else I will let you know

September 23, 2024
A MySpondylitisTeam Member

Hello I have look that up because my symptoms are getting worst and it came up . I'm not sure but I'm going to my rehumatologist tommorow and will let you know what she tells me.

September 9, 2024
A MySpondylitisTeam Member

Thank you Lynn. I have never heard of spinal muscular atrophy either. Thank you for your response.

September 8, 2024

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