Connect with others who understand.

sign up Log in
Resources
About MySpondylitisTeam
Powered By
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Bertolloti Syndrome And If You Do What Can You Recommend As A Patient? Thank You

A MySpondylitisTeam Member asked a question 💭

Over 30 years in pain. Epidurals over the years but pain keeps coming back. Now with slipped disc increase symptoms through out spine. PT, injections etc ...fed up

posted July 8
•
Be the first to like/hug
A MySpondylitisTeam Member

That looks agonizing and I'm not one for surgery at all, but I think that may be the only way to affectively deal with that. Have you considered consulting a Neurospine Surgeon?

posted July 8
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Look for Trent on my team. He recently went through SI joint total fusions and is much better. He told me to send anyone his way and he'll tell all about the process. I'll put you on my team as well so you can see my posts. I dont know much about your condition at all. I did Google it though and saw some pics that look super agonizing, like there's an extra bone from birth that shouldn't be there. Ouch ouch OUCH! Im so sorry for that pain you've been enduring.

I mention a Neuro Spine surgeon because I had a Radiologist Dr friend a few years ago who had undergone spine fusion in his neck, his wife too. I "need" it too but have been putting off because mine will end up in yearly surgeries until my whole spine is fused. Ugh. Anyway, he pointed out that because there are so many nerves controlling our entire bodies in and out of the spine, its a good idea to have a Neuro instead of Ortho spine surgeon work on spine needs due to their extra 2 years of schooling on nerves. I had a friend undergo a one level fusion 12 years ago and woke up unable to feel her entire left leg and walk on her own ever again. Neuros only for me after seeing that! She was just 52 at the time and had to spend a couple months in an old folks rehab home, very disheartening.

Good luck to you Dorothy, reach out anytime.😌😔🙏

posted July 9
A MySpondylitisTeam Member

I have just seen a "cold" orthopedic surgeon...waste of money and time. Maybe I should...

posted July 9

Related content

View All

Does Anyone Have Jaw Pain That Won't Go Away? If You Have This What Do You Do For It? Thank You (Email Address Can Only Be Seen By MySpondylitisTeam Users)

A MySpondylitisTeam Member asked a question 💭

Anyone Have Any Insight That They Can Share To Help With IBS Due To AS? Thank You For Your Time

A MySpondylitisTeam Member asked a question 💭

Do Any Of You Have Uveitis? Dry Eye Syndrome? Have You Found A Particular Eye Drop Or Gel That Helps With Your Symptoms The Most?

A MySpondylitisTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in