For the last year,every 8 weeks I get a biologic, Simponi Auria. I don't think it's working. I don't know the next course of action. Advice please.
Likely a pinched nerve somewhere in your spine is causing leg and foot pain. My mom takes gabapentin at night for relief. I don't take meds for it. Instead I do a lot of physical therapy loosening and joint/tissue hydration/oxygenation for it. When I go for a walk i find hiking poles extremely helpful to minimize limping, stabilize gait, and help support weight. The frozen water bottle is hard for me due to cold sensitivity even wearing socks.
Instead, I use a pilates bar set on the floor in front of me sitting on the edge of a chair or sofa. Then I roll both feet equidistant apart on the bar back and forth toe tip to heel to loosen plantar fascia tissue. I also found it helpful to get rid of the heavy comforter and blankets on my bed and switch to much lighter weight duvet to take the weight off my legs. Lastly, it helps me to sleep with a king size pillow between my legs while lying on my side to elevate the top one hip to foot same elevation. Huge help. When lying on my back I shift it to under my knees to depressurize my lumbar.
I was on Embrel for years and it helped a lot. The I also developed vasculitis and started Retuxience, it’s an amazing difference. So glad I started that treatment. I still have pain but less than ever before.. I stopped Embrel.
@A MySpondylitisTeam Member for a while my feet and ankles would hurt so terribly. I had so much difficulty walking on them. My rheumatologist started me on Sulfasalazine and had to adjust the dose a couple of times. And although they still hurt, it has helped greatly compared to how they were before the medicine. The Sulfasalazine is what has helped my peripheral AS more so than any of the biologics I have tried thus far. I truly hope you are able to find relief.
@A MySpondylitisTeam Member I love the water bottle idea. Brilliant!! That is something I must try. Thank you for that info.
Thank you for the suggestions. I see my rheumatologist next week🙂
My legs, ankles and feet have been an ongoing problem. It went from ankle pain that kept me up at night for the first 15 years, to foot pain that made it that I hobbled everywhere, to shin pain and burning in my calves at night starting last year. It just keeps changing. For my foot pain my rheumatologist had me roll my foot on a frozen water bottle, I got specialized shoes (gdefy) and used K-tape. That worked. I am still figuring out my shins and the burning pain at night in my shins and calves. My spine specialist gave me an Rx for a topical cream with gabapeptin for that.
My rheumatologist wanted me to try simponi aria, but I decided to try everything else first... AIP diet, yoga, PT, meditation, therapy...
These are usually working well. I still have issues, but not nearly as bad as before. I hope this can help in some way. If nothing else, know you are not alone...