I Just Got Blood Tests Back And They Were Very Good. Almost No Inflammation. But I Still Have Pain And Fatigue. I'm Confused About Flare. | MySpondylitisTe

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I Just Got Blood Tests Back And They Were Very Good. Almost No Inflammation. But I Still Have Pain And Fatigue. I'm Confused About Flare.
A MySpondylitisTeam Member asked a question πŸ’­
posted February 10
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A MySpondylitisTeam Member

Ive felt extremely exhausted every second of every day for more than 40 years...ugh. But we all just have to do the best we can and try not to let it all stop us from doing anything we need to do or want to do!!!

posted February 10
A MySpondylitisTeam Member

It's not always gonna show up, besides it's disease attacking you. Your blood changes constantly, the only thing that stays is the disease. Besides the fact that your joints are more or less worn out. The fatigue is disease as well. These things can come and go, no matter what you do. 5 minutes at a time, increase your vitamin B6 and B12. When you're that fatigued unfortunately you can only rest. Sorry Hun

posted February 10
A MySpondylitisTeam Member

Hi Nadine, I totally understand what you are going through, sometimes I think we look for answers in the medical profession and they can't or rather don't give us the answers we need, my muscular skeletal clinic diagnosed me with spondylitis then back tracked and said its spondylosis, so I'm trying to get a blood test for the HLA B27 protein but the problem is because I've been with the muscular skeletal clinic my doctor can't request a blood sample which is totally ridiculous, my grandad died at 54 of a massive heart attack as all my mum and her siblings alo have heart problems my mum also has multiple meyloma, so there answers I want but I am not getting so I really do sympathise with you I feel totally let down by the medical profession.
I hope you get the answers that you need love and best wishes xx

posted February 11
A MySpondylitisTeam Member

I read somewhere that 40% of OA patients also have RA. Both can cause fatigue. Chronic pain causes depression which can also cause fatigue. I started taking a turmeric & Boswellia by HCL 2000Mg ($23 Amazon) and my pain dropped from an 8 to a 2 in 3 days. It's been 2 weeks now and pain level is still low for the most part except my right knee that needs to replaced. Be sure you get this brand because it is better absorbed than most. I've taken turmeric before and it did nothing so I think it's the Boswellia combination that makes the difference. Unfortunately, fatigue is still a real problem but not quite as bad as it was.

posted February 10
A MySpondylitisTeam Member

Hi nadine2, your joints are if painful, will unfortunately always be painful, when you have a flare up ( my experience) everypart of my body hurts, feels like the flu 20x stronger,hurts to move, everyday you have any inflammatory autoimmune disease everyday you get a little worse..hope this finds you well

posted February 10

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