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What Spondylitis Symptoms Keep You Up At Night?
A MySpondylitisTeam Member asked a question 💭
posted November 28, 2023
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A MySpondylitisTeam Member

I now get remicade infusions every 6 weeks. From the cancer clinic. Has changed my life for the best. Less pain. Able to sleep. Less stiffness. I love my rheumatologist.

posted December 5, 2023
A MySpondylitisTeam Member

In the fall and winter I must sleep with a heating pad on my neck and upper spine to stop the throbbing. I wake up every time it automatically shuts itself off. I use a microwaveable rice bag in the coldest parts of winter.

posted December 6, 2023
A MySpondylitisTeam Member

I think that I probably would have less pain if I had infusions too. However, I have had to interrupt my taking Rinvoq so many times for one reason or another, that it wouldn't work out for me. I have to hold back for 2 weeks after vaccines or for 2 weeks before surgery and for a while afterwards. For instance, tomorrow I have to go see a podiatrist for a painful toe. (I am a diabetic, besides having AS, RA and Fibromyalgia.) I don't know what he is going to do. I think it is an ingrown toenail. I had 2 toenails removed earlier this year, already, a very painful process. I had to be off of Rinvoq for 6 weeks. That was a very painful process too. I will get through this too, as God is my Strength! I am so happy to hear that infusions are working for you, Lemuel!

posted December 6, 2023
A MySpondylitisTeam Member

Does anybody feel like tgey are cold and minutes later wake up drenched.....dysregulation?

posted November 28, 2023
A MySpondylitisTeam Member

“Keep Me Up At Nigh” ‘the Pain my lower back’ tossing around the bed, I can’t sleep on my back is painful my lower back, only be able to sleep sideways, I have to take Tylenol, I also a muscle relaxers Tizadine 8mg & I put heating pad my lower back to help me to fall sleep! Also my pain management doctor prescribed me Fentanyl patch 100mcg & my Rheumatologist prescribed me 7 different biologics medicines until I found the right one for me. Cimzia is the only one works the best for my Ankylosis Spondylitis & I inject my self every 2 weeks! I suffer severe digestive problem my Gastroenterologist diagnosed me with Gastroparesis. My stomach is paralyze I don’t digest my food I get on set severe vomiting, severe malnutrition & I’m in under TPN for 4 years already!

posted 6 days ago (edited)

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