I now get remicade infusions every 6 weeks. From the cancer clinic. Has changed my life for the best. Less pain. Able to sleep. Less stiffness. I love my rheumatologist.
In the fall and winter I must sleep with a heating pad on my neck and upper spine to stop the throbbing. I wake up every time it automatically shuts itself off. I use a microwaveable rice bag in the coldest parts of winter.
I think that I probably would have less pain if I had infusions too. However, I have had to interrupt my taking Rinvoq so many times for one reason or another, that it wouldn't work out for me. I have to hold back for 2 weeks after vaccines or for 2 weeks before surgery and for a while afterwards. For instance, tomorrow I have to go see a podiatrist for a painful toe. (I am a diabetic, besides having AS, RA and Fibromyalgia.) I don't know what he is going to do. I think it is an ingrown toenail. I had 2 toenails removed earlier this year, already, a very painful process. I had to be off of Rinvoq for 6 weeks. That was a very painful process too. I will get through this too, as God is my Strength! I am so happy to hear that infusions are working for you, Lemuel!
Does anybody feel like tgey are cold and minutes later wake up drenched.....dysregulation?
“Keep Me Up At Nigh” ‘the Pain my lower back’ tossing around the bed, I can’t sleep on my back is painful my lower back, only be able to sleep sideways, I have to take Tylenol, I also a muscle relaxers Tizadine 8mg & I put heating pad my lower back to help me to fall sleep! Also my pain management doctor prescribed me Fentanyl patch 100mcg & my Rheumatologist prescribed me 7 different biologics medicines until I found the right one for me. Cimzia is the only one works the best for my Ankylosis Spondylitis & I inject my self every 2 weeks! I suffer severe digestive problem my Gastroenterologist diagnosed me with Gastroparesis. My stomach is paralyze I don’t digest my food I get on set severe vomiting, severe malnutrition & I’m in under TPN for 4 years already!