At What Age Are Most People Diagnosed At? | MySpondylitisTeam

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At What Age Are Most People Diagnosed At?
A MySpondylitisTeam Member asked a question 💭

Literature states 20-30’s yrs at onset. I’ve always had low back pain and problems all my life but suddenly have a Sacroilitis but am not being told anything. Just take these pills and it will help. Waiting for VA to approve of me going to the spine clinic at our local physicians group. Just aggravated because I’m layning on my back or standing are my only 2 positions I can stand.

posted October 21, 2023
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A MySpondylitisTeam Member

I’m in a similar pickle here in Washington. I get a lot of referrals to things like, Tai Chi, Accupuncture, and Recreational Therapy? Not sure how that helps my sacroilitis? Maybe acupuncture but they haven’t set up an appt. Yet. I was also referred for Massage Therapy but haven’t heard from them either. Monday I will call them and try to set up appointments. I probably need an MRI but a walk in clinic doctor referred me to the Spine Clinic and VA hadn’t approved that yet either.
So I get it, they really don’t talk to you much. I’m fortunate that I was a nurse for 36yrs and can stand behind the provider to read their typing, no one has asked me not to do it. So, I will continue, I also can make out X-rays and MRI’s.

posted October 21, 2023
A MySpondylitisTeam Member

Hello, Kay. I also am a spinal patient of the VA; Indianapolis. My docs give me diagnostic images but then they don't talk to me. I have to read my radiology report myself to figure out things. They don't give me referrals to specialists. At this time, can't afford to see a specialist outside the VA, not even to look at the MRIs.

posted October 21, 2023

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